ArticleBMC health services research2017
Engaging patients in health research: identifying research priorities through community town halls.
Article in BMC health services research, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient and public engagement in priority setting: A systematic rapid review of the literature.PloS one · 2018Pooled it
- Translating scores into meaning: a co-produced forum for patient-reported outcome measure interpretation in pediatric congenital heart disease.Research involvement and engagement · 2026Article
- Perspectives on Emotional Care: A Qualitative Study with Cancer Patients, Carers, and Health Professionals.Healthcare (Basel, Switzerland) · 2023Article
- Patient- and Community-Oriented Primary Care Approaches for Health in Rural, Remote and Resource-Dependent Places: Insights for Eco-Social Praxis.Frontiers in public health · 2022Review
- A pilot study of a culturally-appropriate, educational intervention to increase participation in cancer clinical trials among African Americans and Latinos.Cancer causes & control : CCC · 2021Article
- Public engagement with genomic medicine: a summary of town hall discussions.Journal of community genetics · 2021Article
- Changing Health-Related Behaviors 1: Patient-Oriented Research and Patient Engagement in Health Research.Methods in molecular biology (Clifton, N.J.) · 2021Article
- Formative research to design a culturally-appropriate cancer clinical trial education program to increase participation of African American and Latino communities.BMC public health · 2020Article
- Article
- Giving patients a voice: a participatory evaluation of patient engagement in Newfoundland and Labrador Health Research.Research involvement and engagement · 2020Article
- Involving citizens in priority setting for public health research: Implementation in infection research.Health expectations : an international journal of public participation in health care and health policy · 2018Article
- People with lived experience (PWLE) of depression: describing and reflecting on an explicit patient engagement process within depression research priority setting in Alberta, Canada.Research involvement and engagement · 2018Article
- The top research questions asked by people with lived depression experience in Alberta: a survey.CMAJ openArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe vision of Canada's Strategy for Patient-Oriented Research is that patients be actively engaged as partners in health research. Support units have been created across Canada to build capacity in patient-oriented research and facilitate its conduct. This study aimed to explore patients' health research priorities in the province of Newfoundland and Labrador (NL).
methodsEight town halls were held with members of the general public in rural and urban settings across the province. Sessions were a hybrid information-consultation event, with key questions about health research priorities and outcomes guiding the discussion.
resultsSixty eight members of the public attended town hall sessions. A broad range of health experiences in the healthcare system were recounted. Key priorities for the public included access and availability of providers and services, disease prevention and health promotion, and follow-up support and community care. In discussing their health research priorities, participants spontaneously raised a broad range of suggestions for improving the healthcare system in our jurisdiction.
conclusionsPublic research priorities and suggestions for improving the provision of healthcare provide valuable information to guide Support Units' planning and priority-setting processes. A range of research areas were raised as priorities for patients that are likely comparable to other healthcare systems. These create a number of health research questions that would be in line with public priorities. Findings also provide lessons learned for others and add to the evidence base on patient engagement methods.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.