ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2017
Psychometric evaluation of the pediatric and parent-proxy Patient-Reported Outcomes Measurement Information System and the Neurology and Traumatic Brain Injury Quality of Life measurement item banks in pediatric traumatic brain injury.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 3 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Consensus-Based Evaluation of Outcome Measures in Pediatric Stroke Care: A Toolkit.Pediatric neurology · 2023Guideline
- Patient-Reported Outcome Measures for Pediatric Patients With Sport-Related Injuries: A Systematic Review.Journal of athletic training · 2022Pooled it
- Quality of life measures in older adults after traumatic brain injury: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Pooled it
- Chatbot Intervention and Cancer Risk Knowledge in Adolescents and Young Adults With Cancer Predisposition: A Randomized Clinical Trial.JAMA network open · 2026Trial
- Development and pilot testing of AYA-RISE, a risk information and screening education intervention for adolescents and young adults with cancer risk syndromes.Familial cancer · 2026Article
- The Dynamic Interaction Between Psychological Health and Sleep Symptoms Following Adolescent Concussion.The Journal of pediatrics · 2026Article
- Critical Functional Domains in Pediatric Onset TUBB4A-Related Leukodystrophy: A Clinical and Caregiver's Perspective.Pediatric neurology · 2025Article
- Psychometric properties and post-hoc CAT analysis of the pediatric PROMIS® item banks anxiety and depressive symptoms in a combined Swedish Child and Adolescent Psychiatry and School sample.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Asking questions that are "close to the bone": integrating thematic analysis and natural language processing to explore the experiences of people with traumatic brain injuries engaging with patient-reported outcome measures.Frontiers in digital health · 2024Article
- Article
- Post-Intensive Care Syndrome in a Cohort of School-Aged Children and Adolescent ICU Survivors: The Importance of Follow-up in the Acute Recovery Phase.Journal of pediatric intensive care · 2022Article
- Adverse Childhood Experiences and Patient-Reported Outcome Measures in Critically Ill Children.Frontiers in pediatrics · 2022Article
- Emotional Aspects of Pediatric Post-Intensive Care Syndrome Following Traumatic Brain Injury.Journal of child & adolescent trauma · 2021Article
- Feasibility of a Commercially Available Virtual Reality System to Achieve Exercise Guidelines in Youth With Spina Bifida: Mixed Methods Case Study.JMIR serious games · 2020Article
- Measuring Health-Related Quality of Life in Pediatric Neurology.Journal of child neurology · 2020Review
- Transitions to Outpatient Care After Traumatic Brain Injury for Hispanic Children.Hospital pediatrics · 2020Article
- Quality of Life in Children With Sturge-Weber Syndrome.Pediatric neurology · 2019Article
- Article
- Translation and validation of the Korean version of PROMIS® pediatric and parent proxy measures for emotional distress.Journal of patient-reported outcomes · 2019Article
- Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
purposeThe primary objective is to provide evidence of convergent and discriminant validity for the pediatric and parent-proxy versions of the Patient-Reported Outcomes Measurement Information System (PROMIS) Anxiety, Depression, Anger, Peer Relations, Mobility, Pain Interference, and Fatigue item banks, the Neurology Quality of Life measurement system (Neuro-QOL) Cognition-General Concerns and Stigma item banks, and the Traumatic Brain Injury Quality of Life (TBI-QOL) Executive Function and Headache item banks in a pediatric traumatic brain injury (TBI) sample.
methodsParticipants were 134 parent-child (ages 8-18 years) days. Children all sustained TBI and the dyads completed outcome ratings 6 months after injury at one of six medical centers across the United States. Ratings included PROMIS, Neuro-QOL, and TBI-QOL item banks, as well as the Pediatric Quality of Life inventory (PedsQL), the Health Behavior Inventory (HBI), and the Strengths and Difficulties Questionnaire (SDQ) as legacy criterion measures against which these item banks were validated.
resultsThe PROMIS, Neuro-QOL, and TBI-QOL item banks demonstrated good convergent validity, as evidenced by moderate to strong correlations with comparable scales on the legacy measures. PROMIS, Neuro-QOL, and TBI-QOL item banks showed weaker correlations with ratings of unrelated constructs on legacy measures, providing evidence of discriminant validity.
conclusionOur results indicate that the constructs measured by the PROMIS, Neuro-QOL, and TBI-QOL item banks are valid in our pediatric TBI sample and that it is appropriate to use these standardized scores for our primary study analyses.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.