Evidence map›Paper›PMID 28271316›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2017

Psychometric evaluation of the pediatric and parent-proxy Patient-Reported Outcomes Measurement Information System and the Neurology and Traumatic Brain Injury Quality of Life measurement item banks in pediatric traumatic brain injury.

Hilary Bertisch, Frederick P Rivara, Pamela A Kisala, Jin Wang, Keith Owen Yeates, Dennis Durbin, Mark R Zonfrillo, Michael J Bell, Nancy Temkin, David S Tulsky

Abstract read
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In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Guideline
  2. Pooled it
  3. Quality of life measures in older adults after traumatic brain injury: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Hilary BertischNYU Rusk Rehabilitation, New York University School of Medicine, 240 East 38th Street, Suite 17-72, New York, NY, 10016, USA. Hilary.bertisch@nyumc.org.ORCID 0000-0001-5877-8737
Frederick P RivaraDepartments of Pediatrics and Epidemiology, Harborview Injury Prevention and Research Center, University of Washington, Seattle Children's Research Institute, Seattle, WA, USA.
Pamela A KisalaCenter on Assessment Research and Translation, Department of Physical Therapy, University of Delaware, Newark, DE, USA.
Jin WangHarborview Injury Prevention and Research Center, University of Washington, Seattle, WA, USA.
Keith Owen YeatesDepartment of Psychology, Hotchkiss Brain Institute and Alberta Children's Hospital Research Institute, University of Calgary, Calgary, AB, USA.
Dennis DurbinDepartment of Pediatrics, The Children's Hospital of Philadelphia, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, PA, USA.
Mark R ZonfrilloDepartment of Emergency Medicine, Hasbro Children's Hospital, Alpert Medical School of Brown University, Providence, RI, USA.
Michael J BellCritical Care Medicine, Neurological Surgery and Pediatrics, University of Pittsburgh, Pittsburgh, PA, USA.
Nancy TemkinDepartments of Neurological Surgery and Biostatistics, University of Washington, Seattle, WA, USA.
David S TulskyCenter on Assessment Research and Translation, Departments of Physical Therapy and Psychological and Brain Sciences, University of Delaware, Newark, DE, USA.

Funding

Effect of treatment on outcome after TBI in children and adolescentsU01CE002196 · CE · UNIVERSITY OF WASHINGTON · PI RIVARA, FREDERICK P. · 2012 to 2015
$1.8M
NCIPC CDC HHS U01 CE002196
6 · The paper itself

Abstract

purposeThe primary objective is to provide evidence of convergent and discriminant validity for the pediatric and parent-proxy versions of the Patient-Reported Outcomes Measurement Information System (PROMIS) Anxiety, Depression, Anger, Peer Relations, Mobility, Pain Interference, and Fatigue item banks, the Neurology Quality of Life measurement system (Neuro-QOL) Cognition-General Concerns and Stigma item banks, and the Traumatic Brain Injury Quality of Life (TBI-QOL) Executive Function and Headache item banks in a pediatric traumatic brain injury (TBI) sample.

methodsParticipants were 134 parent-child (ages 8-18 years) days. Children all sustained TBI and the dyads completed outcome ratings 6 months after injury at one of six medical centers across the United States. Ratings included PROMIS, Neuro-QOL, and TBI-QOL item banks, as well as the Pediatric Quality of Life inventory (PedsQL), the Health Behavior Inventory (HBI), and the Strengths and Difficulties Questionnaire (SDQ) as legacy criterion measures against which these item banks were validated.

resultsThe PROMIS, Neuro-QOL, and TBI-QOL item banks demonstrated good convergent validity, as evidenced by moderate to strong correlations with comparable scales on the legacy measures. PROMIS, Neuro-QOL, and TBI-QOL item banks showed weaker correlations with ratings of unrelated constructs on legacy measures, providing evidence of discriminant validity.

conclusionOur results indicate that the constructs measured by the PROMIS, Neuro-QOL, and TBI-QOL item banks are valid in our pediatric TBI sample and that it is appropriate to use these standardized scores for our primary study analyses.

Indexed as

Patient Reported Outcome MeasuresAdolescentBrain Injuries, TraumaticChildFemaleHumansMaleNeurologyProxyPsychometricsQuality of LifeSurveys and QuestionnairesAdolescentBrain InjuriesChildOutcome assessment (Health Care)Patient-centered outcomes research

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.