ArticleDiabetes spectrum : a publication of the American Diabetes Association2017
Perceptions of Adolescent Patients of the "Lived Experience" of Type 1 Diabetes.
Article in Diabetes spectrum : a publication of the American Diabetes Association, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
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Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A Systematic Review of the Effects of Provider Bias on Health in Youth and Young Adults with Type 1 Diabetes.Current diabetes reports · 2024Pooled it
- The Lived Experience of Adolescents With Type 1 Diabetes Mellitus in Bahir Dar, Ethiopia: Phenomenological Study.JMIR diabetes · 2026Article
- Lived Experiences of Adolescents with Type 1 Diabetes Mellitus Receiving Treatment at Rwanda Diabetes Association: A Qualitative Study.Rwanda journal of medicine and health sciences · 2026Article
- Co-Designing Peer Support Interventions for Adolescents with Type 1 Diabetes and Their Caregivers: A Novel Integration of Community-Based Participatory Research and Human-Centred Design Thinking.Hormone research in paediatrics · 2026Article
- Designing a Carbohydrate Counting App for Young Adults With Type 1 Diabetes: Usability Testing Interview Study.Journal of medical Internet research · 2026Article
- Living with type 1 diabetes mellitus: experiences of Colombian teenagers and parents.Revista da Escola de Enfermagem da U S P · 2026Article
- Lived experiences of Type 1 diabetes patients visiting a tertiary care hospital of Nepal: A descriptive phenomenological study.PLOS global public health · 2026Article
- Closed-loop therapy: recent advancements and potential predictors of glycemic outcomes.Expert opinion on drug delivery · 2025Review
- Article
- Exploring the Influence of a Diabetes Specialty Outpatient Clinic on Adolescents With Type 1 Diabetes in Barbados: A Qualitative Study.Pediatric diabetes · 2025Article
- Naming hypoglycemia: a narrative tool for young people with type 1 diabetes and their families.Diabetology international · 2024Article
- Living with type 1 diabetes and schooling among young people in Ghana: a truism of health selection, inadequate support, or artefactual explanation of educational inequalities?BMC public health · 2024Article
- Lived Experience of People with Type 1 Diabetes in North East Ethiopia; Psycho-Social and Economical Perspective, a Phenomenological Study.Diabetes, metabolic syndrome and obesity : targets and therapy · 2023Article
- Adolescents' and their parents' experiences of using a closed-loop system to manage type 1 diabetes in everyday life: qualitative study.Chronic illness · 2022Article
- Socio-cognitive determinants affecting insulin adherence/non-adherence in late adolescents and young adults with type 1 diabetes: a systematic review protocol.Journal of diabetes and metabolic disorders · 2022Article
- Type 1 Diabetes Patient Experiences Before and After Transfer from a Paediatric to an Adult Hospital.Patient preference and adherence · 2022Article
- Self-care practice, lived experience of type 1 diabetes mellitus patients at Kemisse General Hospital, North Eastern Ethiopia: Phenomenological study.SAGE open medicine · 2022Article
- Determinants of adherence to insulin and blood glucose monitoring among adolescents and young adults with type 1 diabetes in Qatar: a qualitative study.F1000Research · 2022Article
- The Influence of Health Mindset on Perceptions of Illness and Behaviors Among Adolescents.International journal of behavioral medicine · 2021Article
- Defining features of diabetes resilience in emerging adults with type 1 diabetes.Pediatric diabetes · 2021Article
Corrections and comments
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Authors and funding
4 authors.
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Abstract
The care and management of adolescents with type 1 diabetes presents numerous challenges that are inherent to the fears, attitudes, and perceptions of their illness. This qualitative study aimed to explore the "lived experience" of individuals with type 1 diabetes. In-depth interviews were conducted with 20 patients diagnosed with type 1 diabetes in their adolescent years to elicit their views, perceptions, and concerns regarding living with diabetes. All interviews were conducted and analyzed using the principles of grounded theory. Five categories defining the patients' lived experience were elicited: Barriers, Develop Skills, Manage Emotion, Social World, and Health Care Professionals. The problems experienced by adolescents with type 1 diabetes are multifactorial. Existentially, type 1 diabetes affects their daily activities and impinges on their academic achievement and personal aspirations. They have great difficulty coping with their health status and highlight a lack of empathy from health care professionals (HCPs). Their major fear is of hypoglycemia, resulting in their subsequent focus of preventing hypoglycemic episodes. Indeed, regardless of consequence, blood glucose levels are often deliberately kept above recommended levels, which serves to decrease the effectiveness of their health care management. This study shows that the quality of care provided for adolescent patients with type 1 diabetes is failing to meet their expectations and falls short of the essential standards commensurate with current health care policy. Improvements in long-term care management for these patients require changes in both patients' and professionals' understanding of the disease and of the ways it is managed.
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