ArticleAMIA ... Annual Symposium proceedings. AMIA Symposium2016
Sharing Patient-Generated Data in Clinical Practices: An Interview Study.
Article in AMIA ... Annual Symposium proceedings. AMIA Symposium, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 47 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
47 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Use of Patient-Generated Health Data From Consumer-Grade Devices by Health Care Professionals in the Clinic: Systematic Review.Journal of medical Internet research · 2024Pooled it
- Barriers to and Facilitators of Using eHealth to Support Gestational Diabetes Mellitus Self-management: Systematic Literature Review of Perceptions of Health Care Professionals and Women With Gestational Diabetes Mellitus.Journal of medical Internet research · 2022Pooled it
- Patient-governed agentic health data exchange.npj health systems · 2026Review
- Barriers and Enablers to Integrating Patient-Generated Health Data in Shared Decision-Making From Health Care Professional and Patient Perspectives: Scoping Review.JMIR mHealth and uHealth · 2026Article
- Sharing Patient-Generated Health Data: The Role of Healthcare Quality, Mistrust, and Discrimination Across Race-Gender Identities.Journal of racial and ethnic health disparities · 2026Article
- Attitudes of healthcare professionals and researchers toward wearable and app derived patient generated health data.NPJ digital medicine · 2025Article
- The Impact of Data Control and Delayed Discounting on the Public's Willingness to Share Different Types of Health Care Data: Empirical Study.JMIR medical informatics · 2025Article
- Patient-Generated Health Data (PGHD): Understanding, Requirements, Challenges, and Existing Techniques for Data Security and Privacy.Journal of personalized medicine · 2024Review
- The use of patient-generated health data in the management of low anterior resection syndrome: a qualitative study.Frontiers in surgery · 2024Article
- Personal Health Data Tracking by Blind and Low-Vision People: Survey Study.Journal of medical Internet research · 2023Article
- The Perceived Utility of Smartphone and Wearable Sensor Data in Digital Self-tracking Technologies for Mental Health.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2023Article
- Recommendations for the Quality Management of Patient-Generated Health Data in Remote Patient Monitoring: Mixed Methods Study.JMIR mHealth and uHealth · 2023Article
- "Not Sure Sharing Does Anything Extra for Me": Understanding How People with Cardiovascular Disease Conceptualize Sharing Personal Health Data with Peers.International journal of environmental research and public health · 2022Article
- Data Visualization for Chronic Neurological and Mental Health Condition Self-management: Systematic Review of User Perspectives.JMIR mental health · 2022Review
- Designing Flexible Longitudinal Regimens: Supporting Clinician Planning for Discontinuation of Psychiatric Drugs.Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference · 2022Article
- Health Care Providers' and Professionals' Experiences With Telehealth Oncology Implementation During the COVID-19 Pandemic: A Qualitative Study.Journal of medical Internet research · 2022Article
- Envisioning the use of in-situ arm movement data in stroke rehabilitation: Stroke survivors' and occupational therapists' perspectives.PloS one · 2022Article
- Willingness to Share Data From Wearable Health and Activity Trackers: Analysis of the 2019 Health Information National Trends Survey Data.JMIR mHealth and uHealth · 2021Article
- Clinicians and Older Adults' Perceptions of the Utility of Patient-Generated Health Data in Caring for Older Adults: Exploratory Mixed Methods Study.JMIR aging · 2021Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Patients are tracking and generating an increasingly large volume of personal health data outside the clinic due to an explosion of wearable sensing and mobile health (mHealth) apps. The potential usefulness of these data is enormous as they can provide good measures of everyday behavior and lifestyle. However, how we can fully leverage patient-generated data (PGD) and integrate them in clinical practice is less clear. In this interview study, we aim to understand how patients and clinicians currently share patient-generated data in clinical care practice. From the study, we identified technical, social, and organizational challenges in sharing and fully leveraging patient-generated data in clinical practices. Our findings can provide researchers potential avenues for enablers and barriers in sharing patient-generated data in clinical settings.
Indexed as
Identifiers
28269928PMC5333267What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.