ArticleAMIA ... Annual Symposium proceedings. AMIA Symposium2016
Adolescent and Caregiver use of a Tethered Personal Health Record System.
Article in AMIA ... Annual Symposium proceedings. AMIA Symposium, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient-Centered Digital Health Records and Their Effects on Health Outcomes: Systematic Review.Journal of medical Internet research · 2022Pooled it
- Pediatric oncology healthcare professionals' attitudes to and awareness of regulations for minors' and guardians' online record access: a mixed-methods study in Sweden.BMC health services research · 2025Article
- "Really Hard to Navigate": A Qualitative Study of Motivators, Barriers, and Supports of Adolescent-Clinician Communication on Patient Portals.Journal of pediatric and adolescent gynecology · 2025Article
- Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles.BMC medical ethics · 2025Article
- Perspectives on Swedish Regulations for Online Record Access Among Adolescents With Serious Health Issues and Their Parents: Mixed Methods Study.JMIR pediatrics and parenting · 2025Article
- Development of Recommendations for the Digital Sharing of Notes With Adolescents in Mental Health Care: Delphi Study.JMIR mental health · 2024Article
- The Effect of Using a Client-Accessible Health Record on Perceived Quality of Care: Interview Study Among Parents and Adolescents.Journal of participatory medicine · 2024Article
- Adolescents' reasons for accessing their health records online, perceived usefulness and experienced provider encouragement: a national survey in Sweden.BMJ paediatrics open · 2024Article
- Interest in using patient portals among adolescents in mental health care - a cross-sectional study.BMC health services research · 2023Article
- Views on patient portal use for adolescents in mental health care - a qualitative study.BMC health services research · 2023Article
- Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review.Journal of medical Internet research · 2022Article
- Telehealth experiences of providers and patients who use augmentative and alternative communication.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Assessment of Prevalence of Adolescent Patient Portal Account Access by Guardians.JAMA network open · 2021Article
- Helping clinicians and patients navigate electronic patient portals: ethical and legal principles.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2019Article
- Should parents see their teen's medical record? Asking about the effect on adolescent-doctor communication changes attitudes.Journal of the American Medical Informatics Association : JAMIA · 2018Article
- Variability in adolescent portal privacy features: how the unique privacy needs of the adolescent patient create a complex decision-making process.Journal of the American Medical Informatics Association : JAMIA · 2018Article
- The need for guidance and consistency in adolescent privacy policies: a survey of CMIOs.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2018Article
- Proxy use of patient portals on behalf of children: Federally Qualified Health Centers as a case study.Digital healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Supporting adolescent patient engagement in care is an important yet underexplored topic in consumer health informatics. Personal Health Records (PHRs) show potential, but designing PHR systems to accommodate both emerging adults and their parents is challenging. We conducted a mixed-methods study with teenage adolescent patients (ages 13-17) with cancer and blood disorders, and their parents, to investigate their experiences with My-Chart, a tethered PHR system. Through analyses of usage logs and independently-conducted surveys and interviews, we found that patients and parents both valued MyChart, but had different views about the role of the PHR for care communication and management, and different attitudes about its impact on the patient's ability to manage care. Specific motivations for using MyChart included patient-parent coordination of care activities, communication around hospital encounters, and support for transitioning to adult care. Finally, some parents had concerns about certain diagnostic test results being made available to their children.
Indexed as
Identifiers
28269859PMC5333234What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.