Evidence map›Paper›PMID 28261642›Full record

ArticleOncology and therapy2016

The Perspectives of Haematological Cancer Patients on Tissue Banking.

Heidi Turon, Amy Waller, Tara Clinton-McHarg, Allison Boyes, Jennifer Fleming, Paula Marlton, Simon J Harrison, Rob Sanson-Fisher

Abstract read
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Article in Oncology and therapy, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Heidi TuronSchool of Medicine and Public Health, Priority Research Centre for Health Behaviour, University of Newcastle, Newcastle, NSW Australia ; Hunter Medical Research Institute, Newcastle, NSW Australia.
Amy WallerSchool of Medicine and Public Health, Priority Research Centre for Health Behaviour, University of Newcastle, Newcastle, NSW Australia ; Hunter Medical Research Institute, Newcastle, NSW Australia.
Tara Clinton-McHargSchool of Medicine and Public Health, Priority Research Centre for Health Behaviour, University of Newcastle, Newcastle, NSW Australia ; Hunter Medical Research Institute, Newcastle, NSW Australia.
Allison BoyesSchool of Medicine and Public Health, Priority Research Centre for Health Behaviour, University of Newcastle, Newcastle, NSW Australia ; Hunter Medical Research Institute, Newcastle, NSW Australia.
Jennifer FlemingFaculty of Medicine, School of Public Health, Centre for Values, Ethics and the Law in Medicine (VELiM), The University of Sydney, Sydney, NSW Australia.
Paula MarltonDivision of Cancer Services, Department of Haematology, Princess Alexandra Hospital, Brisbane, QLD Australia ; School of Medicine, University of Queensland, Brisbane, QLD Australia.
Simon J HarrisonHaematology Department, Peter MacCallum Cancer Centre, East Melbourne, VIC Australia.
Rob Sanson-FisherSchool of Medicine and Public Health, Priority Research Centre for Health Behaviour, University of Newcastle, Newcastle, NSW Australia ; Hunter Medical Research Institute, Newcastle, NSW Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundA high level of support for tissue banking has been identified amongst both the general public and patients. However, much debate remains about the regulatory framework of tissue banks.

objectiveThis study explored the views of haematological cancer patients regarding tissue banking and how tissue banks should operate.

methodsHaematological cancer patients from three outpatient clinics in Australia completed a questionnaire examining their preferences for tissue banking as well as items about their sociodemographic characteristics, disease and treatment history.

resultsThe majority of participants (95%) reported being willing to allow their leftover tissue to be used for medical research. Three quarters (76%) supported the idea of their medical record being linked to their tissue sample, and 77% preferred a blanket (one-off) consent model for future research use of their tissue sample. Only 57 (27%) participants had been asked to give a tissue sample for research, 98% of whom gave permission.

conclusionThe majority of haematological cancer patients are willing to donate their leftover tissue to a tissue bank and have their medical records linked to tissue samples and prefer a one-off consent process. These novel data from potential donors inform the debate about how tissue banks might operate.

fundingStrategic Research Partnership Grant from the Cancer Council NSW to the Newcastle Cancer Control Collaborative (New-3C) and infrastructure funding from the Hunter Medical Research Institute (HMRI). A.W. is supported by an Australian Research Council DECRA fellowship (DE150101262). T.C.M. was supported by a Leukaemia Foundation of Queensland Post-Doctoral Fellowship. A.B. is supported by National Health and Medical Research Council (APP1073317) and Cancer Institute NSW (13/ECF/1-37) Early Career Fellowships.

Indexed as

BiobankingConsentHematologyOncologyTissue banking

Identifiers

PMID28261642
PMCPMC5315074

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.