ArticleBMJ supportive & palliative care2019
Patient values informing medical treatment: a pilot community and advance care planning survey.
Article in BMJ supportive & palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 26 citations in OpenAlex.
- Advance Care Planning in Oncology Nursing: An Interpretive Description Study.Journal of advanced nursing · 2025Article
- Attitudes and Perceptions on Advance Care Planning Among Chinese-Speaking Older Australians.The American journal of hospice & palliative care · 2024Article
- Effect of communication skills training on documentation of shared decision-making for patients with life-limiting illness: An observational study in an intensive care unit.Critical care and resuscitation : journal of the Australasian Academy of Critical Care Medicine · 2023Article
- The intricacy of interactions: qualitative exploration of preferences and perceptions of advance care planning among healthcare professionals, patients and those close to them.Palliative care and social practice · 2022Article
- Advance Care Planning Conversations in the Oncology Setting: Tips from the Experts.Journal of cancer education : the official journal of the American Association for Cancer Education · 2021Article
- Values, preferences and goals identified during shared decision making between critically ill patients and their doctors.Critical care and resuscitation : journal of the Australasian Academy of Critical Care Medicine · 2021Article
- A Qualitative Exploration of Seriously Ill Patients' Experiences of Goals of Care Discussions in Australian Hospital Settings.Journal of general internal medicine · 2020Article
- Palliative and End-of-Life Care: Vital Aspects of Holistic Diabetes Care of Older People With Diabetes.Diabetes spectrum : a publication of the American Diabetes Association · 2020Article
- Don't forget shared decision-making in the COVID-19 crisis.Internal medicine journal · 2020Article
- Seriously Ill Patients' Willingness to Trade Survival Time to Avoid High Treatment Intensity at the End of Life.JAMA internal medicine · 2020Article
- End-of-life priorities of older adults with terminal illness and caregivers: A qualitative consultation.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- A Comparison of the Accuracy of Clinician Prediction of Survival Versus the Palliative Prognostic Index.Journal of pain and symptom management · 2018Article
- Compassionate communities and end-of-life care.Clinical medicine (London, England) · 2018Article
Corrections and comments
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Authors and funding
6 authors at 4 institutions in 2 countries.
Funding
Abstract
Medicine regards the prevention of death as an important priority. Yet patients may have a range of priorities of equal or greater importance. These other priorities are often not discussed or appreciated by treating doctors.
objectivesWe sought to identify priorities of care for patients attending an advance care planning (ACP) clinic and among the general population, and to identify factors associated with priorities other than prolonging life.
methodsWe used a locally developed survey tool 'What Matters Most' to identify values. Choices presented were: maintaining dignity, avoiding pain and suffering, living as long as possible, and remaining independent. Participants rated the importance of each and then selected a main priority for their doctor. Participant groups were a purposive sample of 382 lay people from the general population and 100 attendees at an ACP clinic.
resultsLiving as long as possible was considered to be less important than other values for ACP patients and for the general population. Only 4% of ACP patients surveyed and 2.6% of our general population sample selected 'living as long as possible' as their top priority for medical treatment.
conclusions'Living as long as possible' was not the most important value for ACP patients, or for a younger general population. Prioritisation of other goals appeared to be independent of extreme age or illness. When end of life treatment is being discussed with patients, priorities other than merely prolonging life should be considered.
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