ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2017
The self-care practices of family caregivers of persons with poor prognosis cancer: differences by varying levels of caregiver well-being and preparedness.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 61 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
61 citing papers in PubMed, 3 syntheses or guidelines pooled it, 113 citations in OpenAlex.
- Breast Cancer Survivors' Perception on Health Promotion and Healthy Lifestyle: A Systematic Review and Qualitative Meta-Synthesis.International journal of environmental research and public health · 2025Pooled it
- Dietary Quality and Intake of Cancer Caregivers: A Systematic Review of Quantitative Studies and Recommendations for Future Research.Cancer medicine · 2025Pooled it
- Health and Well-Being Needs Among Head and Neck Cancer Caregivers - A Systematic Review.The Annals of otology, rhinology, and laryngology · 2023Pooled it
- Palliative Care Coaching for Family Caregivers of Patients With Advanced Cancer: A Randomized Clinical Trial.JAMA network open · 2026Trial
- Resilience, preparedness, and distress among family caregivers of patients with advanced cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Trial
- Lessons learned from the implementation of a video health coaching technology intervention to improve self-care of family caregivers of adults with heart failure.Research in nursing & health · 2021Trial
- Trial
- Resilience and Protective Factors Associated with Well-Being Among Older Informal Caregivers: A Convergent Segregated Mixed Studies Systematic Review.European journal of investigation in health, psychology and education · 2026Review
- Development and validation of the self-care in partners of cancer patients (SC-PC) questionnaire: a mixed methods study protocol.BMJ open · 2026Article
- Associations of Cancer-Related Posttraumatic Stress Symptoms and Gender With Health Behaviors Among Caregivers of Adult Patients With Colorectal Cancer.Psycho-oncology · 2026Article
- Training and Preparedness among Informal Cancer Caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Knowledge, attitudes, and practices regarding heart failure among Chinese patients: a cross-sectional study.BMC public health · 2025Article
- Assessments of unmet communication needs and quality of staff-family communication at geriatric facilities: Instruments development and psychometric testing.International journal of nursing studies advances · 2025Article
- Positive Psychology Insights on the Effects of Spirituality on Shared Decision-Making in Patients with Chronic Heart Failure: The Chain-Mediated Effects of Benefit-Finding and Decision Self-Efficacy.Healthcare (Basel, Switzerland) · 2025Article
- Article
- Article
- Examination of the relationship between the empathic tendencies and sleep quality of caregivers of cancer patients.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Exploring the lived experience of Chinese family caregivers caring for end-of-life cancer patients at home: a phenomenological study in Singapore.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Hope mediates the association between anxiety and caregivers' preparedness in schizophrenia: a cross-sectional study.Frontiers in public health · 2025Article
- Feasibility and Acceptability of Collecting Passive Smartphone Data for Potential Use in Digital Phenotyping Among Family Caregivers and Patients With Advanced Cancer.JCO clinical cancer informatics · 2025Observational
1 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
14 authors at 2 institutions in 1 country.
Funding
Abstract
purposeLittle is known about the impact of family caregiving for adults with poor prognosis cancer on caregivers' own individual self-care practices. We explored differences in caregivers' discrete self-care practices associated with varying levels of caregiver well-being, preparedness, and decision-making self-efficacy.
methodsCross-sectional survey within eight community-based southeastern U.S. cancer centers was conducted. Family caregivers of Medicare beneficiaries ≥65 years with pancreatic, lung, brain, ovarian, head and neck, hematologic, or stage IV cancer completed measures of individual self-care practices (health responsibility, physical activity, nutrition, spiritual growth, interpersonal relations, stress management, and sleep), well-being (anxiety, depression, and health-related quality of life [HRQoL]), preparedness, and decision-making self-efficacy.
resultsCaregivers (n = 294) averaged 66 years, were mostly female (72.8%), white (91.2%), Protestant (76.2%), retired (54.4%), and patients' spouse/partner (60.2%). Approximately, half were rural-dwellers (46.9%) with incomes <$50,000 (53.8%). Most provided support 6-7 days/week (71%) for >1 year (68%). Nearly a quarter (23%) reported high depression and 34% reported borderline or high anxiety. Low engagement in all self-care practices was associated with worse caregiver anxiety, depression, and mental HRQoL (all p values < .05). Caregivers with lower health responsibility, spiritual growth, interpersonal relation, and stress management scores had lower preparedness and decision-making self-efficacy.
conclusionsA significant proportion of caregivers simultaneously report low engagement in all forms of self-care practices, high depression and anxiety, and low HRQoL mental health scores. Caregiver well-being, preparedness, and decision-making self-efficacy might be optimized through interventions targeted at enhancing health responsibility, stress management, interpersonal relationships, and spiritual growth self-care practices.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.