ArticlePediatrics2017
The Sudden Death in the Young Case Registry: Collaborating to Understand and Reduce Mortality.
Article in Pediatrics, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Cardiac arrest and sudden cardiac death registries: a systematic review of global coverage.Open heart · 2020Pooled it
- The Cardiovascular Care of the Pediatric Athlete.Journal of the American College of Cardiology · 2025Review
- Postmortem diagnostics in sudden unexpected death in infants and children: use and utility.European journal of pediatrics · 2025Observational
- Sleep-Related Sudden Unexpected Infant Death Among Infants Prenatally Substance Exposed.Pediatrics · 2024Article
- Imaging of sudden unexpected death in infancy: a comprehensive nationwide French survey.Pediatric radiology · 2024Article
- The impact of damaging epilepsy and cardiac genetic variant burden in sudden death in the young.Genome medicine · 2024Article
- Sudden Unexplained Death in Childhood: Current Understanding.Pediatric emergency care · 2023Article
- Informed consent of postmortem sampling: Bibliographic review.Revista de ciencias forenses de Honduras · 2022Article
- A review of the causes and risk factors for sudden unexpected death in the young.Forensic science, medicine, and pathology · 2022Review
- Developmental changes in cardiac expression of KCNQ1 and SCN5A spliceoforms: Implications for sudden unexpected infant death.Heart rhythm · 2022Article
- Article
- Explaining Sudden Unexpected Infant Deaths, 2011-2017.Pediatrics · 2021Article
- Prevalence of Abnormal Heart Weight After Sudden Death in People Younger than 40 Years of Age.Journal of the American Heart Association · 2020Article
- CDC-supported epilepsy surveillance and epidemiologic studies: A review of progress since 1994.Epilepsy & behavior : E&B · 2020Review
- Sudden Unexplained Death in Childhood: A Neuropathology Review.Frontiers in neurology · 2020Review
- Screening for prevention of sudden death in the young: what is new?Current opinion in cardiology · 2020Article
- Epidemiology of Sudden Death in a Population-Based Study of Infants and Children.The journal of pediatrics: X · 2020Article
- Respiratory syncytial virus-associated mortality in a healthy 3-year-old child: a case report.BMC pediatrics · 2019Article
- USA's experience with sudden unexpected infant death and sudden death in the young case registries.Archives of disease in childhood · 2019Article
- National registry for sudden unexpected deaths of infants and children in England: why do we need one and do families want one?Archives of disease in childhood · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
19 authors.
Funding
Abstract
Knowledge gaps persist about the incidence of and risk factors for sudden death in the young (SDY). The SDY Case Registry is a collaborative effort between the National Institutes of Health, the Centers for Disease Control and Prevention, and the Michigan Public Health Institute. Its goals are to: (1) describe the incidence of SDY in the United States by using population-based surveillance; (2) compile data from SDY cases to create a resource of information and DNA samples for research; (3) encourage standardized approaches to investigation, autopsy, and categorization of SDY cases; (4) develop partnerships between local, state, and federal stakeholders toward a common goal of understanding and preventing SDY; and (5) support families who have lost loved ones to SDY by providing resources on bereavement and medical evaluation of surviving family members. Built on existing Child Death Review programs and as an expansion of the Sudden Unexpected Infant Death Case Registry, the SDY Case Registry achieves its goals by identifying SDY cases, providing guidance to medical examiners/coroners in conducting comprehensive autopsies, evaluating cases through child death review and an advanced review by clinical specialists, and classifying cases according to a standardized algorithm. The SDY Case Registry also includes a process to obtain informed consent from next-of-kin to save DNA for research, banking, and, in some cases, diagnostic genetic testing. The SDY Case Registry will provide valuable incidence data and will enhance understanding of the characteristics of SDY cases to inform the development of targeted prevention efforts.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.