ArticleApplied clinical informatics2017
Getting what they need when they need it. Identifying barriers to information needs of family caregivers to manage dementia-related behavioral symptoms.
Article in Applied clinical informatics, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers, 1 of them a synthesis that pooled it.
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Who cites it
37 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Underreporting of Gender and Race/Ethnicity Differences in NIH-Funded Dementia Caregiver Support Interventions.American journal of Alzheimer's disease and other dementias · 2018Pooled it
- Effects of the mHealth Supportive Care Program for Family Caregivers of Individuals With Dementia and Diabetes: Pilot Randomized Controlled Trial.JMIR mHealth and uHealth · 2026Trial
- A randomized trial of a web-based platform to help families manage dementia-related behavioral symptoms: The WeCareAdvisor™.Contemporary clinical trials · 2017Trial
- Plans4Care, a web application providing caregivers personalized solutions to manage dementia-related care challenges: Proof of concept and efficacy trial.Contemporary clinical trials communications · 2026Article
- Article
- Family Caregiver Support Apps: Questionable Evidence, Content, Security and Unmet Needs.Journal of the American Geriatrics Society · 2025Article
- Intention to use a health information platform in supportive housing for people with disabilities: An application of the UTAUT model.PloS one · 2025Article
- Article
- Social Media Discourse Related to Caregiving for Older Adults Living With Alzheimer Disease and Related Dementias: Computational and Qualitative Study.JMIR aging · 2024Article
- Spiritual Well-Being in Appalachian Family Caregivers.Online journal of rural nursing and health care : the official journal of the Rural Nurse Organization · 2024Article
- Family Caregiving of Patients With Heart Failure and Vascular Dementia in Rural Appalachia: A Mixed-Methods Study.Western journal of nursing research · 2024Article
- Supportive care decision-making processes of persons with dementia and their caregivers.Dementia (London, England) · 2023Article
- Article
- A qualitative investigation of the psychosocial services utilised by care-givers of patients with Alzheimer's disease and related dementias in southwestern Uganda.Ageing and society · 2023Article
- A qualitative study of factors influencing ePHR adoption by caregivers and care providers of Alzheimer's patients: An extension of the unified theory of acceptance and use of technology model.Health science reports · 2023Article
- Co-Design of a Financial and Legal Planning Tool for Care Partners of People Living With Alzheimer's Disease and Related Dementias.Innovation in aging · 2023Article
- Quantifying the qualitative: exploring epistemic network analysis as a method to study work system interactions.Ergonomics · 2022Article
- A human factors and ergonomics approach to conceptualizing care work among caregivers of people with dementia.Applied ergonomics · 2022Article
- Technology Acceptance of a Mobile Application to Support Family Caregivers in a Long-Term Care Facility.Applied clinical informatics · 2022Article
- A Web-Based Platform (CareVirtue) to Support Caregivers of People Living With Alzheimer Disease and Related Dementias: Mixed Methods Feasibility Study.JMIR aging · 2022Article
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Authors and funding
7 authors.
Funding
Abstract
backgroundConsumer health informatics (CHI) such as web-based applications may provide the platform for enabling the over 15 million family caregivers of patients with Alzheimer's Disease or related dementias the information they need when they need it to support behavioral symptom management. However, for CHI to be successful, it is necessary that it be designed to meet the specific information needs of family caregivers in the context in which caregiving occurs. A sociotechnical systems approach to CHI design can help to understand the contextual complexities of family caregiving and account for those complexities in the design of CHI for family caregivers.
objectivesThis study used a sociotechnical systems approach to identify barriers to meeting caregivers' information needs related to the management of dementia-related behavioral symptoms, and to derive design implications that overcome barriers for caregiver-focused web-based platforms. We have subsequently used these design implications to inform the development of a web-based platform, WeCareAdvisor,TM which provides caregivers with information and an algorithm by which to identify and manage behavioral symptoms for which they seek management strategies.
methodsWe conducted 4 focus groups with family caregivers (N=26) in a Midwestern state. Qualitative content analysis of the data was guided by a sociotechnical systems framework.
resultsWe identified nine categories of barriers that family caregivers confront in obtaining needed information about behavioral symptom management from which we extrapolated design implications for a web-based platform. Based on interactions within the sociotechnical system, three critical information needs were identified: 1) timely access to information, 2) access to information that is tailored or specific to caregiver's needs and contexts, and 3) usable information that can directly inform how caregivers' manage behaviors.
conclusionsThe sociotechnical system framework is a useful approach for identifying information needs of family caregivers to inform design of web-based platforms that are user-centered.
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