Evidence map›Paper›PMID 28219336›Full record

ArticleBMC medical research methodology2017

Participant retention practices in longitudinal clinical research studies with high retention rates.

Martha Abshire, Victor D Dinglas, Maan Isabella A Cajita, Michelle N Eakin, Dale M Needham, Cheryl Dennison Himmelfarb

2 registry-linked trialsOpen access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC medical research methodology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 172 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
172citing papers in PubMed, 3 pooled it
46.8field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06199570 narecruitingnot on this mapstarted 2024, after this paper: background citation

Support for Cancer Patients Awaiting News (SCAN Study): Pilot Testing a Stress Management Program

TypeinterventionalSponsorHackensack Meridian HealthRan2024 to 2027Enrolled60ConditionsLung CancerArmsAdapted Stress Management Program, Enhanced Usual Care
NCT07262593 naterminatednot on this mapstarted 2024, after this paper: background citation

Family-Based Meal Timing for Cancer Prevention Among Native Hawaiian and Other Pacific Islanders: FAMTIME

TypeinterventionalSponsorUniversity of UtahRan2024 to 2024Enrolled2ConditionsCancer PreventionArmsTime Restricted Eating (TRE), Medically Tailored Meals (MTM)
3 · Its place in the literature

Who cites it

172 citing papers in PubMed, 3 syntheses or guidelines pooled it, 278 citations in OpenAlex.

  1. Pooled it
  2. Natural History of Cognitive Impairment in Critical Illness Survivors. A Systematic Review.American journal of respiratory and critical care medicine · 2020
    Pooled it
  3. Suicide risk around the world: a meta-analysis of longitudinal studies.Social psychiatry and psychiatric epidemiology · 2019
    Pooled it
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  17. Improving Breastfeeding by Empowering Mothers in Vietnam: A Randomised Controlled Trial of a Mobile App.International journal of environmental research and public health · 2020
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112 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 1 institution in 1 country.

Martha AbshireJohns Hopkins University School of Nursing, 525 North Wolfe Street, Suite 527, 21287, Baltimore, MD, USA. mabshir1@jhu.edu.ORCID 0000-0003-1824-1542
Victor D DinglasOutcomes After Critical Illness and Surgery (OACIS) Group, Johns Hopkins University, Baltimore, MD, USA.
Maan Isabella A CajitaJohns Hopkins University School of Nursing, 525 North Wolfe Street, Suite 527, 21287, Baltimore, MD, USA.
Michelle N EakinOutcomes After Critical Illness and Surgery (OACIS) Group, Johns Hopkins University, Baltimore, MD, USA.
Dale M NeedhamOutcomes After Critical Illness and Surgery (OACIS) Group, Johns Hopkins University, Baltimore, MD, USA.
Cheryl Dennison HimmelfarbJohns Hopkins University School of Nursing, 525 North Wolfe Street, Suite 527, 21287, Baltimore, MD, USA.
Johns Hopkins University · US

Funding

Institute for Clinical and Translational ResearchUL1TR001079 · NCATS · JOHNS HOPKINS UNIVERSITY · PI FORD, DANIEL ERNEST · 2013 to 2017
$60.1M
Improving Long-Term Outcomes Clinical Research for Acute Respiratory FailureR24HL111895 · NHLBI · JOHNS HOPKINS UNIVERSITY · PI NEEDHAM, DALE MURRAY · 2013 to 2017
$5.4M
NCATS NIH HHS UL1 TR001079NHLBI NIH HHS R24 HL111895
6 · The paper itself

Abstract

backgroundThere is a need for improving cohort retention in longitudinal studies. Our objective was to identify cohort retention strategies and implementation approaches used in studies with high retention rates.

methodsLongitudinal studies with ≥200 participants, ≥80% retention rates over ≥1 year of follow-up were queried from an Institutional Review Board database at a large research-intensive U.S. university; additional studies were identified through networking. Nineteen (86%) of 22 eligible studies agreed to participate. Through in-depth semi-structured interviews, participants provided retention strategies based on themes identified from previous literature reviews. Synthesis of data was completed by a multidisciplinary team.

resultsThe most commonly used retention strategies were: study reminders, study visit characteristics, emphasizing study benefits, and contact/scheduling strategies. The research teams were well-functioning, organized, and persistent. Additionally, teams tailored their strategies to their participants, often adapting and innovating their approaches.

conclusionsThese studies included specialized and persistent teams and utilized tailored strategies specific to their cohort and individual participants. Studies' written protocols and published manuscripts often did not reflect the varied strategies employed and adapted through the duration of study. Appropriate retention strategy use requires cultural sensitivity and more research is needed to identify how strategy use varies globally.

Indexed as

Clinical Trials as TopicPatient DropoutsResearch DesignData CollectionHumansLongitudinal StudiesCohortFollow-up studiesLongitudinalMethodsPatient dropoutsResearch design/StandardsRetention strategies

Identifiers

PMID28219336
PMCPMC5319074
OpenAlexW2590679164

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.