ArticleHealth and quality of life outcomes2017
The impact of preterm birth <37 weeks on parents and families: a cross-sectional study in the 2 years after discharge from the neonatal intensive care unit.
Article in Health and quality of life outcomes, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 54 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
54 citing papers in PubMed, 4 syntheses or guidelines pooled it, 141 citations in OpenAlex.
- Quality of Life of Parents of Premature Infants: A Systematic Review and Meta-Analysis.JAMA network open · 2026Pooled it
- Factors associated with posttraumatic stress and anxiety among the parents of babies admitted to neonatal care: a systematic review.BMC pregnancy and childbirth · 2024Pooled it
- Is intimate partner violence and obstetrics characteristics of pregnant women associated with preterm birth in Ethiopia? Umbrella review on preterm birth.Reproductive health · 2023Pooled it
- Preference-Based Health-Related Quality of Life Outcomes Associated with Preterm Birth: A Systematic Review and Meta-analysis.PharmacoEconomics · 2020Pooled it
- Congenital Anomaly Prevalence: A 10-Year Retrospective Study in a Tertiary Hospital in Turkey.Birth defects research · 2026Article
- Maternal Stress Responses and Coping Following a NICU Experience.Children (Basel, Switzerland) · 2025Article
- Trajectory of parental health-related quality of life after neonatal hospitalization - a prospective cohort study.Health and quality of life outcomes · 2025Article
- Early Life Stress, DNA Methylation of NR3C1 and HSD11B2 , and Oral Feeding Skill Development in Preterm Infants : A Pilot Study.Advances in neonatal care : official journal of the National Association of Neonatal Nurses · 2025Article
- Internalising and externalising behaviour in siblings of children born preterm Preterm birth: Internalising and externalising behaviour of siblings.PLOS mental health · 2025Article
- "I was so worried": Experiences of parents whose infants were admitted to a neonatal care unit.PLOS global public health · 2025Article
- Caregiver Impact and Understanding of Retinopathy of Prematurity Screening.Journal of patient experience · 2025Article
- Determinants of preterm delivery among mothers who gave birth in hospitals of Wolaita zone, southern Ethiopia, 2023: unmatched case-control study.BMC pregnancy and childbirth · 2024Article
- Prevalence and predictors of common mental disorders among mothers of preterm babies at neonatal intensive care units in Ghana.Scientific reports · 2024Article
- Recalled Maternal Rearing Behaviour of Individuals Born Preterm and Their Mothers: The Impact of Intimate Mother-Child Contact.Journal of clinical medicine · 2024Article
- Unconditional cash transfers for preterm neonates: evidence, policy implications, and next steps for research.Maternal health, neonatology and perinatology · 2024Article
- Health-Related Quality of Life for Parents of Infants with Bronchopulmonary Dysplasia.The Journal of pediatrics · 2024Article
- Supporting Disclosure of Unmet Mental Health Needs among Parents of Critically Ill Infants.The Journal of pediatrics · 2023Article
- The Cohort of Indonesian Preterm Infants for Long-term Outcomes (CIPTO) study: a protocol.BMC pediatrics · 2023Article
- Quality of Life of Mothers and Fathers 4 to 6 Months After Birth: The Effect of a Very Preterm Delivery.Maternal and child health journal · 2023Article
- Preterm Birth Among Intrapartum Cesarean Deliveries at Public Hospitals in Southern Ethiopia: A Multicenter Retrospective Analysis of Risk Factors.International journal of women's health · 2023Article
Corrections and comments
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Authors and funding
8 authors at 6 institutions in 1 country.
Funding
Abstract
backgroundLittle is known about the quality of life of parents and families of preterm infants after discharge from the neonatal intensive care unit (NICU). Our aims were (1) to describe the impact of preterm birth on parents and families and (2) and to identify potentially modifiable determinants of parent and family impact.
methodsWe surveyed 196 parents of preterm infants <24 months corrected age in 3 specialty clinics (82% response rate). Primary outcomes were: (1) the Impact on Family Scale total score; and (2) the Infant Toddler Quality of Life parent emotion and (3) time limitations scores. Potentially modifiable factors were use of community-based services, financial burdens, and health-related social problems. We estimated associations of potentially modifiable factors with outcomes, adjusting for socio-demographic and infant characteristics using linear regression.
resultsMedian (inter-quartile range) infant gestational age was 28 (26-31) weeks. Higher Impact on Family scores (indicating worse effects on family functioning) were associated with taking ≥3 unpaid hours/week off from work, increased debt, financial worry, unsafe home environment and social isolation. Lower parent emotion scores (indicating greater impact on the parent) were also associated with social isolation and unpaid time off from work. Lower parent time limitations scores were associated with social isolation, unpaid time off from work, financial worry, and an unsafe home environment. In contrast, higher parent time limitations scores (indicating less impact) were associated with enrollment in early intervention and Medicaid.
conclusionsInterventions to reduce social isolation, lessen financial burden, improve home safety, and increase enrollment in early intervention and Medicaid all have the potential to lessen the impact of preterm birth on parents and families.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.