ReviewEmerging themes in epidemiology2017
Participatory epidemiology: the contribution of participatory research to epidemiology.
Review in Emerging themes in epidemiology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 2 syntheses or guidelines pooled it, 75 citations in OpenAlex.
- Results and Strategies for a Diversity-Oriented Public Health Monitoring in Germany.International journal of environmental research and public health · 2022Pooled it
- Gentrification, Neighborhood Change, and Population Health: a Systematic Review.Journal of urban health : bulletin of the New York Academy of Medicine · 2020Pooled it
- Going beyond participation: community-led design and evaluation of the Philly Joy Bank.Frontiers in public health · 2026Article
- Considerations for the epidemiological evaluation of hyperlocal interventions: A case study of the New York City overdose prevention centers.Social science & medicine (1982) · 2025Article
- Human anthrax in a non-epizootic area: epidemiological investigation and response based on One Health-Chengdu, China.Frontiers in public health · 2025Article
- Public attitudes towards personal health data sharing in long-term epidemiological research: a Citizen Science approach in the KORA study.BMC public health · 2024Article
- Integrating perspectives of transgender and gender-diverse youth, family members, and professionals to support their health and wellbeing - a mixed-method study protocol.Archives of public health = Archives belges de sante publique · 2024Article
- Development of a crowdsourcing- and gamification-based mobile application to collect epidemiological information and promote healthy lifestyles in Mexico.Scientific reports · 2024Article
- Using participatory epidemiology to investigate the causes of cattle abortion in Southwest Ethiopia.Heliyon · 2024Article
- An inaugural forum on epidemiological modeling for public health stakeholders in Arizona.Frontiers in public health · 2024Article
- Decolonizing Epidemiological Research: A Critical Perspective.Avicenna journal of medicine · 2023Review
- Output-orientated policy engagement: a model for advancing the use of epidemiological evidence in health policy.Health research policy and systems · 2023Article
- Gender and zoonotic pathogen exposure pathways in a resource-limited community, Mpumalanga, South Africa: A qualitative analysis.PLOS global public health · 2023Article
- Digital SARS-CoV-2 Detection Among Hospital Employees: Participatory Surveillance Study.JMIR public health and surveillance · 2021Article
- Addressing the need for indigenous and decolonized quantitative research methods in Canada.SSM - population health · 2021Article
- The Structural and Intercultural Competence for Epidemiological Studies (SICES) guidelines: a 22-item checklist.BMJ global health · 2021Review
- Methodology and study population of the second Swiss national community survey of functioning after spinal cord injury.Spinal cord · 2021Article
- [Participatory health research: origins and current trends].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2021Review
- A review of reviews on principles, strategies, outcomes and impacts of research partnerships approaches: a first step in synthesising the research partnership literature.Health research policy and systems · 2020Review
- Participatory Surveillance Based on Crowdsourcing During the Rio 2016 Olympic Games Using the Guardians of Health Platform: Descriptive Study.JMIR public health and surveillance · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundEpidemiology has contributed in many ways to identifying various risk factors for disease and to promoting population health. However, there is a continuing debate about the ability of epidemiology not only to describe, but also to provide results which can be better translated into public health practice. It has been proposed that participatory research approaches be applied to epidemiology as a way to bridge this gap between description and action. A systematic account of what constitutes participatory epidemiology practice has, however, been lacking.
methodsA scoping review was carried out focused on the question of what constitutes participatory approaches to epidemiology for the purpose of demonstrating their potential for advancing epidemiologic research. Relevant databases were searched, including both the published and non-published (grey) literature. The 102 identified sources were analyzed in terms of comparing common epidemiologic approaches to participatory counterparts regarding central aspects of the research process. Exemplary studies applying participatory approaches were examined more closely.
resultsA highly diverse, interdisciplinary body of literature was synthesized, resulting in a framework comprised of seven aspects of the research process: research goal, research question, population, context, data synthesis, research management, and dissemination of findings. The framework specifies how participatory approaches not only differ from, but also how they can enhance common approaches in epidemiology. Finally, recommendations for the further development of participatory approaches are given. These include: enhancing data collection, data analysis, and data validation; advancing capacity building for research at the local level; and developing data synthesis.
conclusionThe proposed framework provides a basis for systematically developing the emergent science of participatory epidemiology.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.