ReviewHealth research policy and systems2017
Integrating consumer engagement in health and medical research - an Australian framework.
Review in Health research policy and systems, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
49 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Frameworks for supporting patient and public involvement in research: Systematic review and co-design pilot.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- Patient and public engagement in priority setting: A systematic rapid review of the literature.PloS one · 2018Pooled it
- Consumer Priorities for Upper-Extremity Outcome Assessments.Archives of rehabilitation research and clinical translation · 2026Article
- Exploring Patient Organization Involvement in Stem Cell Research: Insights from the Lifeworld.Journal of bioethical inquiry · 2026Article
- Meaningful or Marginal: An Integrative Review of Consumer and Community Involvement in Migrant Health Research.Healthcare (Basel, Switzerland) · 2026Review
- Exploring staff and students' understanding and experience of Public and Patient Involvement (PPI) in an Irish University.Research involvement and engagement · 2026Article
- Experiences of current practice, priorities and strategies for enabling meaningful consumer and community involvement collaborations in health and medical research in Queensland, Australia.Research involvement and engagement · 2026Article
- Consumer Engagement in Chronic Conditions Research: An Integrated Framework Informed by Recognition Theory.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Involving consumers in health research through the use of consumer panels: a scoping review.Research involvement and engagement · 2025Review
- Consumer and community involvement in paediatric intensive care research across Australia and New Zealand: a protocol for a mixed-methods environmental scan.Research involvement and engagement · 2025Review
- Embedding consumer and community involvement in antenatal healthcare research: A methodological approach and perspectives of culturally and linguistically diverse women in Australia.Research involvement and engagement · 2025Article
- Supporting consumer engagement in health research about chronic conditions: a scoping review of evidence-based resources.Research involvement and engagement · 2025Review
- Setting Primary Health and Social Care Priorities Using a Deliberative Democratic Participatory Approach.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Digital Home-Based Self-Monitoring System for People with Heart Failure: Protocol for Development of SmartHeart and Evaluation of Feasibility and Acceptability.JMIR research protocols · 2025Article
- Exploring barriers and solutions to consumer involvement in health service research using a nominal group technique.Research involvement and engagement · 2024Article
- Exploring Consumers' Motivations and Experiences of Engaging as Partners in Cancer Research.The patient · 2024Article
- Partnering with Consumers - Why would I do it? What is it? How do I do it?Journal of medical radiation sciences · 2024Article
- Article
- The ENJOY Seniors Exercise Park IMP-ACT project: IMProving older people's health through physical ACTivity: a hybrid II implementation design study protocol.Archives of public health = Archives belges de sante publique · 2024Article
- Patient and public involvement in preclinical and medical research: Evaluation of an established programme in a Discovery-Based Medical Research Institute.Health expectations : an international journal of public participation in health care and health policy · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundQuality practice of consumer engagement is still in its infancy in many sectors of medical research. The South Australian Health and Medical Research Institute (SAHMRI) identified, early in its development, the opportunity to integrate evidence-driven consumer and community engagement into its operations. PROCESS: SAHMRI partnered with Health Consumers Alliance and consumers in evidence generation. A Partnership Steering Committee of researchers and consumers was formed for the project. An iterative mixed-method qualitative process was used to generate a framework for consumer engagement. This process included a literature review followed by semi-structured interviews with experts in consumer engagement and lead medical researchers, group discussions and a consensus workshop with the Partnership Steering Committee, facilitated by Health Consumer Alliance. OUTCOMES: The literature revealed a dearth of evidence about effective consumer engagement methodologies. Four organisational dimensions are reported to contribute to success, namely governance, infrastructure, capacity and advocacy. Key themes identified through the stakeholder interviews included sustained leadership, tangible benefits, engagement strategies should be varied, resourcing, a moral dimension, and challenges. The consensus workshop produced a framework and tangible strategies.
conclusionComprehensive examples of consumer participation in health and medical research are limited. There are few documented studies of what techniques are effective. This evidence-driven framework, developed in collaboration with consumers, is being integrated in a health and medical research institute with diverse programs of research. This framework is offered as a contribution to the evidence base around meaningful consumer engagement and as a template for other research institutions to utilise.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.