Evidence map›Paper›PMID 28176157›Full record

ArticleJournal of racial and ethnic health disparities2017

Barriers and Strategies for Recruitment of Racial and Ethnic Minorities: Perspectives from Neurological Clinical Research Coordinators.

Sean J Haley, Lauren E Southwick, Nina S Parikh, Jazmin Rivera, Dorothy Farrar-Edwards, Bernadette Boden-Albala

Abstract read
In one paragraph

Article in Journal of racial and ethnic health disparities, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
49citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

49 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
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  3. The experiences of minority language users in health and social care research: A systematic review.The International journal of health planning and management · 2025
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  16. Recruitment and Retention Strategies in Clinical Trials for Hip Fractures: A Cross-Sectional Analysis.Journal of the American Academy of Orthopaedic Surgeons. Global research & reviews · 2025
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  20. Building a diverse national research advisory board.Journal of clinical and translational science · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Sean J HaleyCUNY School of Public Health and Health Policy, City University of New York, 55 West 125th St., New York, NY, 10027, USA. Sean.Haley@sph.cuny.edu.
Lauren E SouthwickDivision of Social Epidemiology, College of Global Public Health, New York University, 41 East 11th St, 7th Floor, New York, NY, USA.
Nina S ParikhDivision of Social Epidemiology, College of Global Public Health, New York University, 41 East 11th St, 7th Floor, New York, NY, USA.
Jazmin RiveraDivision of Social Epidemiology, College of Global Public Health, New York University, 41 East 11th St, 7th Floor, New York, NY, USA.
Dorothy Farrar-EdwardsDepartment of Kinesiology, University of Wisconsin-Madison, 2176 Medical Sciences Center, 1300 University Avenue, Madison, WI, USA.
Bernadette Boden-AlbalaDivision of Social Epidemiology, College of Global Public Health, New York University, 41 East 11th St, 7th Floor, New York, NY, USA.

Funding

Northern Manhattan Initiative for Minority Involvement in Clinical TrialsU24MD006961 · NIMHD · NEW YORK UNIVERSITY · PI BODEN-ALBALA, BERNADETTE MARIE · 2011 to 2015
$3.8M
National Institute of Neurological Disorders and Stroke U24#MD006961National Institute on Minority Health and Health Disparities U24#MD006961NIMHD NIH HHS U24 MD006961
6 · The paper itself

Abstract

introductionRandomized controlled trials (RCTs) are the gold standard within evidence-based research. Low participant accrual rates, especially of underrepresented groups (e.g., racial-ethnic minorities), may jeopardize clinical studies' viability and strength of findings. Research has begun to unweave clinical trial mechanics, including the roles of clinical research coordinators, to improve trial participation rates.

methodsTwo semi-structured focus groups were conducted with a purposive sample of 29 clinical research coordinators (CRCs) at consecutive international stroke conferences in 2013 and 2014 to gain in-depth understanding of coordinator-level barriers to racial-ethnic minority recruitment and retention into neurological trials. Coded transcripts were used to create themes to define concepts, identify associations, summarize findings, and posit explanations.

resultsBarriers related to translation, literacy, family composition, and severity of medical diagnosis were identified. Potential strategies included a focus on developing personal relationships with patients, community and patient education, centralized clinical trial administrative systems, and competency focused training and education for CRCs.

conclusionPatient level barriers to clinical trial recruitment are well documented. Less is known about barriers facing CRCs. Further identification of how and when barriers manifest and the effectiveness of strategies to improve CRCs recruitment efforts is warranted.

Indexed as

EthnicityMinority GroupsPatient SelectionRacial GroupsClinical Trials as TopicFemaleFocus GroupsHumansMaleNervous System DiseasesResearch PersonnelBarriersClinical research coordinatorsClinical trialsSecondary 92C50Strategies MSC Primary 91C99Underrepresented populations

Identifiers

PMID28176157
PMCPMC5547022

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.