ArticleJournal of the American Medical Informatics Association : JAMIA2017
Shared decision-making using personal health record technology: a scoping review at the crossroads.
Article in Journal of the American Medical Informatics Association : JAMIA, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
24 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- The Impact of Patient Access to Electronic Health Records on Health Care Engagement: Systematic Review.Journal of medical Internet research · 2024Pooled it
- A Systematic Review of Wearable Sensors and IoT-Based Monitoring Applications for Older Adults - a Focus on Ageing Population and Independent Living.Journal of medical systems · 2019Pooled it
- A Systematic Review of Wearable Patient Monitoring Systems - Current Challenges and Opportunities for Clinical Adoption.Journal of medical systems · 2017Pooled it
- Decision support strategies for bedside nursing clinical reasoning: A scoping review.International journal of nursing studies advances · 2025Review
- A randomized controlled trial to evaluate innovative decision support in the context of fall prevention.NPJ digital medicine · 2025Article
- Impact of encounters on patient app use: results of a tethered mobile personal health record usage pattern analysis.BMC health services research · 2024Article
- Personal Health Record implementation in rural primary care: A descriptive exploratory study using RE-AIM framework.PLOS digital health · 2024Article
- Clinical Decision Support Tools in the Electronic Medical Record.Kidney international reports · 2024Review
- Methodologies for Evaluating the Usability of Rehabilitation Technologies Aimed at Supporting Shared Decision-Making: Scoping Review.JMIR rehabilitation and assistive technologies · 2023Article
- Factors Associated with Reducing Disparities in Electronic Personal Heath Records Use Among Non-Hispanic White and Hispanic Adults.Journal of racial and ethnic health disparities · 2023Article
- Study of the factors influencing the use of MyData platform based on personal health record data sharing system.BMC medical informatics and decision making · 2022Article
- Personal Health Information Management Among Older Adults: Scoping Review.Journal of medical Internet research · 2021Article
- Chronic care model in the diabetes pay-for-performance program in Taiwan: Benefits, challenges and future directions.World journal of diabetes · 2021Review
- Observational
- An overview of clinical decision support systems: benefits, risks, and strategies for success.NPJ digital medicine · 2020Review
- Ready for Prime Time? Using Normalization Process Theory to Evaluate Implementation Success of Personal Health Records Designed for Decision Making.Frontiers in digital health · 2020Article
- Characteristics of Women Enrolled in a Patient Portal Intervention for Menopause.Women's health reports (New Rochelle, N.Y.) · 2020Article
- Usability and feasibility of consumer-facing technology to reduce unsafe medication use by older adults.Research in social & administrative pharmacy : RSAP · 2020Article
- Advancing biomedical and health informatics knowledge through reviews of existing research.Journal of the American Medical Informatics Association : JAMIA · 2019Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThis scoping review aims to determine the size and scope of the published literature on shared decision-making (SDM) using personal health record (PHR) technology and to map the literature in terms of system design and outcomes. MATERIALS AND
methodsLiterature from Medline, Google Scholar, Cumulative Index to Nursing and Allied Health Literature, Engineering Village, and Web of Science (2005-2015) using the search terms "personal health records," "shared decision making," "patient-provider communication," "decision aid," and "decision support" was included. Articles ( n = 38) addressed the efficacy or effectiveness of PHRs for SDM in engaging patients in self-care and decision-making or ways patients can be supported in SDM via PHR.
resultsAnalysis resulted in an integrated SDM-PHR conceptual framework. An increased interest in SDM via PHR is apparent, with 55% of articles published within last 3 years. Sixty percent of the literature originates from the United States. Twenty-six articles address a particular clinical condition, with 10 focused on diabetes, and one-third offer empirical evidence of patient outcomes. The tethered and standalone PHR architectural types were most studied, while the interconnected PHR type was the focus of more recently published methodological approaches and discussion articles. DISCUSSION: The study reveals a scarcity of rigorous research on SDM via PHR. Research has focused on one or a few of the SDM elements and not on the intended complete process.
conclusionJust as PHR technology designed on an interconnected architecture has the potential to facilitate SDM, integrating the SDM process into PHR technology has the potential to drive PHR value.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.