Observational studyJournal of cancer education : the official journal of the American Association for Cancer Education2018
Informational Needs of Head and Neck Cancer Patients.
Observational study in Journal of cancer education : the official journal of the American Association for Cancer Education, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 6 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
40 citing papers in PubMed, 6 syntheses or guidelines pooled it, 54 citations in OpenAlex.
- Pooled it
- Psychological Factors Related to Treatment Outcomes in Head and Neck Cancer.Advances in therapy · 2024Pooled it
- Health Information Needs of Breast Cancer Survivors: An Umbrella Review.The breast journal · 2024Pooled it
- Effectiveness of Home-Based Telerehabilitation Interventions for Dysphagia in Patients With Head and Neck Cancer: Systematic Review.Journal of medical Internet research · 2023Pooled it
- The psychosocial experiences of human papillomavirus (HPV) positive oropharyngeal cancer patients following (chemo)radiotherapy: A systematic review and meta-ethnography.Psycho-oncology · 2022Pooled it
- Return to work in patients with head and neck cancer: Systematic review and meta-analysis.Head & neck · 2022Pooled it
- Evaluating the Feasibility of Educational Videos in a Medical Oncology Sarcoma Clinic to Improve Patient Knowledge and Satisfaction.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
- Development and validation of a self-management ability scale for patients with head and neck cancer undergoing radiotherapy and chemotherapy (SMA-HNC).Scientific reports · 2026Article
- Enduring Power of Print: How Health Information Pamphlets Promote Equity and Trust in Patient Education.JCO oncology practice · 2026Article
- Patient experience and shared decision-making in HPV-positive oropharyngeal cancer: A systematic review of qualitative and quantitative evidence.Clinical and translational radiation oncology · 2025Review
- Informational Needs of Lung Cancer Patients and Caregivers.Journal of cancer education : the official journal of the American Association for Cancer Education · 2025Article
- Activation and Preparedness for Survivorship Care Among Survivors of Oral and Oropharyngeal Cancers.Head & neck · 2025Article
- Return to work, after head and neck cancer: results from the French VICAN study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Information Needs of Patients With Head and Neck Cancer and Their Supports in Relation to Treatment Management Choices: Scoping Review.JMIR cancer · 2025Article
- Fertility Information Perceptions and Needs of People with Cancer, Their Family Members, and Caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Availability and Characteristics of Support Groups for People With Head and Neck Cancer in Australia.Asia-Pacific journal of clinical oncology · 2025Article
- The citizen perspective on challenges and rehabilitation needs among individuals treated for head and neck cancer: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Optimizing presurgical education for patients with head and neck cancer receiving laryngectomy and free flap surgery: A qualitative study.Head & neck · 2024Article
- Factors related to the return to work of head and neck cancer patients diagnosed between 2004-2011 in Belgium: a multivariate Fine-Gray regression model analysis.Archives of public health = Archives belges de sante publique · 2024Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The patient journey with head and neck cancer (HNC) is particularly challenging given the physical and functional impact of the cancer and treatment. The ability to perform activities of daily living can be severely compromised and have a profound impact on psychosocial well-being. These complex and long-lasting effects can affect patient quality of life for months to years and the literature shows that information for HNC patients is often insufficient. This observational cross-sectional study utilized survey methodology to investigate the informational needs of HNC patients and the preferred modalities for delivery. This was done to inform the development of resources for HNC patients. Four hundred fifty surveys were analyzed. The median age was 61 years and 58% of the cohort was born in Canada. Most were Caucasian (72%), Chinese being the next largest ethnicity (12%). A third had less than high school education and most had cancer of the oral cavity (28%) and were in long-term follow-up (41%). Comparison of the percentage of items to which a patient responded "very important" across the six domains shows variation of importance by domain (overall mixed effects regression model p < 0.0001). Additionally, each domain was compared to the medical domain and all had significantly lower mean scores (all p < 0.0001) with the medical domain scoring highest (mean score 64.6). The top preferred education modalities were teaching with a healthcare professional and pamphlets. This study highlights the type of information that HNC patients want and the format they wish to receive it in. The design provides a comprehensive way to consult with patients toward building education that responds to their specific needs.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.