Evidence map›Paper›PMID 28148535›Full record

ArticleBMJ open2017

Cohort profile: the Scottish Research register SHARE. A register of people interested in research participation linked to NHS data sets.

Brian McKinstry, Frank M Sullivan, Shobna Vasishta, Roma Armstrong, Janet Hanley, John Haughney, Sam Philip, Blair H Smith, Amanda Wood, Colin N A Palmer

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 44 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
44citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

44 citing papers in PubMed, 3 syntheses or guidelines pooled it.

  1. Pooled it
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  13. Genome-Wide Association Study of Varenicline-Aided Smoking Cessation.Nicotine & tobacco research : official journal of the Society for Research on Nicotine and Tobacco · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Brian McKinstryUsher Institute, University of Edinburgh, Edinburgh, UK.
Frank M SullivanDepartment of Community and Family Medicine, University of Toronto, Toronto, Ontario, Canada.
Shobna VasishtaUniversity of Dundee, Dundee, UK.
Roma ArmstrongNHS Greater Glasgow and Clyde, Glasgow, UK.
Janet HanleyNapier University, Health and Social Care, Edinburgh, UK.
John HaughneyDivision of Applied Health Science, University of Aberdeen, Aberdeen, UK.
Sam PhilipNHS Grampian, Aberdeen, UK.
Blair H SmithDivision of Population Health Sciences, University of Dundee, Dundee, UK.
Amanda WoodNHS Fife Victoria Hospital, Kirkcaldy, UK.
Colin N A PalmerDivision of Cardiovascular & Diabetes Medicine, University of Dundee Centre for Pharmacogenetics and Pharmacogenomics, Ninewells Hospital and Medical School, Dundee, UK.

Funding

Medical Research Council MC_PC_13040Medical Research Council MR/K007017/1Medical Research Council MR/M501633/1Medical Research Council MR/M501633/2Wellcome TrustWellcome Trust 099177/Z/12/Z
6 · The paper itself

Abstract

purposeRecruitment to trials is often difficult. Many trials fail to meet recruitment targets resulting in underpowered studies which waste resources and the time of those who participated. While there is evidence that many people are willing to take part in research, particularly if it involves a condition from which they suffer, researchers are unable to easily contact such people often relying on busy clinicians to identify them. Many clinicians perceive themselves as too busy to take part in research activities. The Scottish Health Research Register SHARE adopts an approach which asks the public to consent to their data held in National Health Service databases to be used to determine their suitability for research projects. Additionally, participants can consent for spare blood, left after routine venepuncture to be automatically identified in the laboratory and stored for future research studies.

participantsAnyone over the age of 16 years in Scotland can participate. Participants are approached through a range of methods including directly at outpatient clinics and general practitioners practices, leaflets with hospital letters and personal email from employers. FINDINGS TO DATE: SHARE has recruited around 130 000 people. SHARE has demonstrated that it can quickly and efficiently recruit to studies, over 20 until now. In addition, it can be used to administer questionnaire studies by email and recruit to patient and public involvement groups. FUTURE PLANS: SHARE continues to steadily recruit with the ambition of eventually achieving 1 000 000 people in Scotland. We are steadily increasing the number of data sets we use for identifying participants. We are adding a mobile app which will facilitate dissemination about research and allow the collection of physiological and activity data if desired. We anticipate that SHARE will soon become the main source of health research recruitment in Scotland.

Indexed as

Biomedical ResearchPatient SelectionRegistriesAdolescentAdultAgedAged, 80 and overBlood BanksDatasets as TopicElectronic Health RecordsFemaleFinancing, GovernmentHumansInformed ConsentMaleMedical Record LinkageRecruitmentresearch registerstrials

Identifiers

PMID28148535
PMCPMC5293989

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.