ArticleEuropean journal of cancer care2018
Living and dying with metastatic bowel cancer: Serial in-depth interviews with patients.
Article in European journal of cancer care, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 2 of them syntheses that pooled it.
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Who cites it
13 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Social relationship challenges perceived by cancer patients and survivors: a qualitative meta-synthesis.BMC psychology · 2025Pooled it
- Operationalizing patient-centered cancer care: A systematic review and synthesis of the qualitative literature on cancer patients' needs, values, and preferences.Psycho-oncology · 2020Pooled it
- Multi-perspective views about healthcare experiences for those with incurable head and neck cancer: A prospective, longitudinal, qualitative study.Palliative medicine · 2026Article
- Structural equation modeling of symptom clusters and health-related quality of life among patients with advanced colorectal cancer receiving chemotherapy in Bangkok, Thailand.Belitung nursing journal · 2025Article
- Social isolation profiles and conditional process analysis among postoperative enterostomy patients with colorectal cancer.BMC psychology · 2024Article
- Signs and symptoms in relation to progression, experiences of an uncertain illness situation in men with metastatic castration-resistant prostate cancer-A qualitative study.European journal of cancer care · 2022Article
- Factors influencing adult carer support planning for unpaid caregiving at the end of life in Scotland: Qualitative insights from triangulated interviews and focus groups.Health & social care in the community · 2022Article
- Article
- Social isolation in adults with cancer: An evolutionary concept analysis.Frontiers in psychology · 2022Review
- Symptom Burden and Palliative Care Needs of Patients with Incurable Cancer at Diagnosis and During the Disease Course.The oncologist · 2021Article
- Multidimensional needs of patients living and dying with heart failure in Kenya: a serial interview study.BMC palliative care · 2018Article
- Rehabilitation of Advanced Cancer Patients in Palliative Care Unit.Annals of rehabilitation medicine · 2018Article
- Living and dying with metastatic bowel cancer: Serial in-depth interviews with patients.European journal of cancer care · 2018Article
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Authors and funding
3 authors.
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Abstract
Colorectal cancer is the second highest cause of cancer deaths. There are significant physical and psycho-social effects on quality of life with advanced disease. Despite this, there are few accounts of the patient experience from advanced illness through to dying. We elicited the longitudinal experiences of living and dying with incurable metastatic colorectal cancer by conducting serial interviews with patients for 12 months or until they died. The interviews were analysed, using a narrative approach, longitudinally as case studies and then together. Thirty-six interviews with 16 patients were conducted. Patients experience metastatic colorectal cancer in three phases; (1) Diagnosis and initial treatment; (2) Deterioration and social isolation and (3) Death and dying. Many patients initially said they hoped to survive, but, as "private" and in-depth accounts of the experience emerged in further interviews, so did the understanding that this hope co-existed with the knowledge that death was near. Palliative chemotherapy and the challenge of accessing private accounts of patient experience can inhibit care planning and prevent patients benefitting from an active holistic palliative care approach earlier in the disease trajectory. This study has immediate clinical relevance for health care professionals in oncology, palliative care and primary care.
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