ArticleSocial science & medicine (1982)2017
Community-based participatory research in a heavily researched inner city neighbourhood: Perspectives of people who use drugs on their experiences as peer researchers.
Article in Social science & medicine (1982), 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 66 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
66 citing papers in PubMed.
- Navigating the CBD: How Urban Risk Environment Shapes Daily Life for People Who Use Drugs in Edmonton's Central Business District.Journal of urban health : bulletin of the New York Academy of Medicine · 2026Article
- Working with, learning from and giving back: Principles for collaborative research with people who use drugs.Addiction (Abingdon, England) · 2026Article
- Meta-Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Engaging communities in recovery: Evaluation of a patient and family advisory committee supporting implementation of the Road to Recovery model of substance use care in British Columbia.Drug and alcohol dependence reports · 2026Article
- Defining success together: a collaborative approach for client and provider-engaged outcomes indicator development in Ontario.Research involvement and engagement · 2026Article
- Article
- "Because we're the experts": centering the expertise of people who use drugs to identify and propose solutions for overdose prevention.Harm reduction journal · 2025Article
- "Inclusivity requires an active effort": building an inclusive and diverse space when engaging people with lived and living experience and caregivers in mental health and substance use health research.Research involvement and engagement · 2025Article
- Something does not add up: Rethinking how we compensate for research participation among people who use drugs.Journal of substance use and addiction treatment · 2025Article
- Mapping experiences of workplace stigma and discrimination within the lived-living experience of illicit drug use and bloodborne virus peer workforce: a scoping review.Harm reduction journal · 2025Article
- Using photovoice to define "community" in substance use disorder research engaging service users, providers, and policymakers.SSM. Qualitative research in health · 2025Article
- Rural community-based participatory research with families of people who use drugs: key considerations from a multi-provincial research partnership.Harm reduction journal · 2025Review
- Understanding parents' experience navigating substance use treatment and the child welfare system.Journal of substance use and addiction treatment · 2025Article
- Facilitating access to supervised smoking facilities: a qualitative study.Harm reduction journal · 2025Article
- Community-Driven Research with People Who Use Drugs: A Virtual Project During Multiple Epidemics.Sociological methodology · 2025Article
- 'I Don't Know How to Live Real Life Sober'-Identifying Needed Supports Through the Voices of Pregnant and Parenting People Seeking Recovery.International journal of mental health nursing · 2025Article
- The Process and Cost of Developing a Community Advisory Board Focused on Opioid Overdose Deaths.Progress in community health partnerships : research, education, and action · 2025Article
- Nowhere to go: a qualitative study examining the health of people who experience emergency shelter service restrictions in Hamilton, Ontario, Canada.BMJ public health · 2025Article
- Transforming health equity through academic integration: ripple effects of high-impact practices in CBPR with refugee-origin Montagnard youth.Frontiers in public health · 2025Article
- Design and implementation of the 6-C model of community engagement.Frontiers in public health · 2025Article
6 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
Community-based participatory research (CBPR) has become an increasingly common approach to research involving people who use(d) drugs (PWUD), who are often employed as peer researchers on these projects. This paper seeks to understand the impact of CBPR on PWUD, particularly those living in heavily researched and stigmatized neighbourhoods where CBPR projects are often located. This study draws on 14 in-depth interviews with PWUD who had previous experience as both peer researchers and research participants in CBPR projects conducted between July 2010 and February 2011. The study employed a CBPR approach in its study design, recruitment, interviewing, and analysis. Our analysis indicates that participants were supportive of CBPR in principle and described the ways in which it helped contest stigmatizing assumptions and researcher bias. Participants also reported positive personal gains from participation in CBPR projects. However, many participants had negative experiences with CBPR projects, especially when CBPR principles were implemented in a superficial or incomplete manner. Participants emphasized the importance of inclusiveness and active deconstruction of hierarchy between researchers and community members to successful CBPR among drug using populations. CBPR has been widely adopted as a research approach within marginalized communities but has often been implemented inconsistently. Still, CBPR can empower communities to contest forms of social stigma that are often reproduced through academic research on marginalized communities. Our findings describe how the benefits of CBPR are maximized when CBPR principles are consistently applied and when community-based researchers are supported in ways that reduce power hierarchies. This suggests a need for capacity building within affected communities to develop independent support, training, and grievance processes for peer researchers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.