ArticleBiology of blood and marrow transplantation : journal of the American Society for Blood and Marrow Transplantation2017
BMT Roadmap: A User-Centered Design Health Information Technology Tool to Promote Patient-Centered Care in Pediatric Hematopoietic Cell Transplantation.
Article in Biology of blood and marrow transplantation : journal of the American Society for Blood and Marrow Transplantation, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06991673 (Adolescent Surgery Roadmap Feasibility and Acceptability Study), which is not on this map. Cited by 30 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Adolescent Surgery Roadmap Feasibility and Acceptability Study
Who cites it
30 citing papers in PubMed, 2 syntheses or guidelines pooled it, 61 citations in OpenAlex.
- Quantifying Patient Portal Use: Systematic Review of Utilization Metrics.Journal of medical Internet research · 2021Pooled it
- What Do Patients and Caregivers Want? A Systematic Review of User Suggestions to Improve Patient Portals.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2020Pooled it
- Enhancing Resilience in Family Caregivers Using an mHealth App.Applied clinical informatics · 2022Trial
- Novel Health Information Technology Tool Use by Adult Patients Undergoing Allogeneic Hematopoietic Cell Transplantation: Longitudinal Quantitative and Qualitative Patient-Reported Outcomes.JCO clinical cancer informatics · 2018Trial
- "Tough Things You're Going to Have to Go Through": Dyadic Interview Study Including the Perspectives and Needs of Patients and Their Caregivers Post-Hematopoietic Cell Transplant.Journal of participatory medicine · 2026Article
- Designing Patient-Centered Interventions for Emergency Care: Participatory Design Study.JMIR formative research · 2025Article
- Child and Family Outcomes and Experiences Related to Family-Centered Care Interventions for Hospitalized Pediatric Patients: A Systematic Review.Children (Basel, Switzerland) · 2024Review
- Article
- Support interventions offered to family members of a child treated with hematopoietic stem cell transplant: A scoping review.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2023Article
- Feasibility & Acceptability of Patient and Family Directed Active Music Making during Pediatric Bone Marrow Transplant Process.European journal of investigation in health, psychology and education · 2022Article
- Risk Factors for COVID-19 in College Students Identified by Physical, Mental, and Social Health Reported During the Fall 2020 Semester: Observational Study Using the Roadmap App and Fitbit Wearable Sensors.JMIR mental health · 2022Article
- Evaluating health technology engagement among family caregivers of patients undergoing hematopoietic cell transplantation.Research square · 2021Article
- Electronic Health Record Portal Use by Family Caregivers of Patients Undergoing Hematopoietic Cell Transplantation: United States National Survey Study.JMIR cancer · 2021Article
- Health Information Technology Utilization by Adolescent and Young Adult Aged Inpatients Undergoing Hematopoietic Cell Transplantation.Journal of adolescent and young adult oncology · 2021Article
- Harnessing mobile health technology to support long-term chronic illness management: exploring family caregiver support needs in the outpatient setting.JAMIA open · 2020Article
- Provider Experiences With Offering Families Bedside Health Record Access Across a Children's Hospital.Hospital pediatrics · 2020Article
- Promoting Health and Well-Being Through Mobile Health Technology (Roadmap 2.0) in Family Caregivers and Patients Undergoing Hematopoietic Stem Cell Transplantation: Protocol for the Development of a Mobile Randomized Controlled Trial.JMIR research protocols · 2020Article
- Online interventions geared toward increasing resilience and reducing distress in family caregivers.Current opinion in supportive and palliative care · 2020Review
- Development of a National Caregiver Health Survey for Hematopoietic Stem Cell Transplant: Qualitative Study of Cognitive Interviews and Verbal Probing.JMIR formative research · 2020Article
- Caregiver availability and patient access to hematopoietic cell transplantation: social worker perspectives inform practice.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
14 authors at 2 institutions in 1 country.
Funding
Abstract
Health information technology (HIT) has great potential for increasing patient engagement. Pediatric hematopoietic cell transplantation (HCT) is a setting ripe for using HIT but in which little research exists. "BMT Roadmap" is a web-based application that integrates patient-specific information and includes several domains: laboratory results, medications, clinical trial details, photos of the healthcare team, trajectory of transplant process, and discharge checklist. BMT Roadmap was provided to 10 caregivers of patients undergoing first-time HCT. Research assistants performed weekly qualitative interviews throughout the patient's hospitalization and at discharge and day 100 to assess the impact of BMT Roadmap. Rigorous thematic analysis revealed 5 recurrent themes: emotional impact of the HCT process itself; critical importance of communication among patients, caregivers, and healthcare providers; ways in which BMT Roadmap was helpful during inpatient setting; suggestions for improving BMT Roadmap; and other strategies for organization and management of complex healthcare needs that could be incorporated into BMT Roadmap. Caregivers found the tool useful and easy to use, leading them to want even greater access to information. BMT Roadmap was feasible, with no disruption to inpatient care. Although this initial study is limited by the small sample size and single-institution experience, these initial findings are encouraging and support further investigation.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.