ArticleBMJ open2017
Patient preferences, knowledge and beliefs about kidney allocation: qualitative findings from the UK-wide ATTOM programme.
Article in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- Allocating a scarce medical resource: liver transplant and lay individuals' patient prioritisation.BMC medical ethics · 2026Article
- Should Adherence to Medical Recommendations Be a Requirement for Kidney Transplant Candidacy?The American journal of bioethics : AJOB · 2026Article
- Patient and Caregiver Perceptions on the Allocation Process and Waitlist, and Accepting a Less-Than-Ideal Kidney: A Canadian Survey.Canadian journal of kidney health and disease · 2025Article
- A convergent mixed methods to study registration on kidney transplantation waiting list refusal by women and men on dialysis in France.Scientific reports · 2024Article
- Adding epitope compatibility to deceased donor kidney allocation criteria: recommendations from a pan-Canadian online public deliberation.BMC nephrology · 2023Article
- Ranking patients on the kidney transplant waiting list based on fuzzy inference system.BMC nephrology · 2022Article
- How Should Deceased Donor Organs Be Allocated? The Patient's Perspective Derived from Semi-Structured Interviews.Patient preference and adherence · 2022Article
- Time to press the reset button-can we use the COVID-19 pandemic to rethink the process of transplant assessment?Clinical kidney journal · 2021Article
- Policy Challenges for Organ Allocation in an Era of "Precision Medicine".Canadian journal of kidney health and disease · 2020Article
- Article
- Patient Perspectives on the Use of Frailty, Cognitive Function, and Age in Kidney Transplant Evaluation.AJOB empirical bioethicsArticle
Corrections and comments
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Authors and funding
16 authors.
Funding
Abstract
objectiveTo explore how patients who are wait-listed for or who have received a kidney transplant understand the current UK kidney allocation system, and their views on ways to allocate kidneys in the future.
designQualitative study using semistructured interviews and thematic analysis based on a pragmatic approach.
participants10 deceased-donor kidney transplant recipients, 10 live-donor kidney transplant recipients, 12 participants currently wait-listed for a kidney transplant and 4 participants whose kidney transplant failed.
settingSemistructured telephone interviews conducted with participants in their own homes across the UK.
resultsThree main themes were identified: uncertainty of knowledge of the allocation scheme; evaluation of the system and participant suggestions for future allocation schemes. Most participants identified human leucocyte anitgen matching as a factor in determining kidney allocation, but were often uncertain of the accuracy of their knowledge. In the absence of information that would allow a full assessment, the majority of participants consider that the current system is effective. A minority of participants were concerned about the perceived lack of transparency of the general decision-making processes within the scheme. Most participants felt that people who are younger and those better matched to the donor kidney should be prioritised for kidney allocation, but in contrast to the current scheme, less priority was considered appropriate for longer waiting patients. Some non-medical themes were also discussed, such as whether parents of dependent children should be prioritised for allocation, and whether patients with substance abuse problems be deprioritised.
conclusionsOur participants held differing views about the most important factors for kidney allocation, some of which were in contrast to the current scheme. Patient participation in reviewing future allocation policies will provide insight as to what is considered acceptable to patients and inform healthcare staff of the kinds of information patients would find most useful.
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