Evidence map›Paper›PMID 28125088›Full record

ArticleGenetics in medicine : official journal of the American College of Medical Genetics2017

Motivations of participants in the citizen science of microbiomics: data from the British Gut Project.

Lorenzo Del Savio, Barbara Prainsack, Alena Buyx

Abstract read
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In one paragraph

Article in Genetics in medicine : official journal of the American College of Medical Genetics, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Review
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  10. Data Work: Meaning-Making in the Era of Data-Rich Medicine.Journal of medical Internet research · 2019
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Lorenzo Del SavioDivision of Biomedical Ethics, Institute of Experimental Medicine, University of Kiel, Kiel, Germany.ORCID 0000-0001-8234-4541
Barbara PrainsackGlobal Health &Social Medicine, King's College London, London, UK.
Alena BuyxDivision of Biomedical Ethics, Institute of Experimental Medicine, University of Kiel, Kiel, Germany.ORCID 0000-0002-5726-7633

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThe establishment of databases for research in human microbiomics is dependent on the recruitment of sufficient numbers and diversity of participants. Factors that support or impede participant recruitment in studies of this type have not yet been studied.

methodsWe report the results of a survey aimed at establishing the motivations of participants in the British Gut Project, a research project that relies on volunteers to provide samples and to help fund the project.

resultsThe two most frequently reported motivations for participation were altruism and solidarity. Low education levels appeared to be a recruitment obstacle. More than half of our 151 respondents said they would participate in further citizen-science projects; 38% said they would not participate in a similar project if it was for-profit or in a project that did not release data sets in repositories accessible to scientists (30%).

conclusionsThe desire to take part in research was reported as a key motivation for participation in the British Gut Project (BGP). Such prosocial motivations can be mobilized for the establishment of large data sets for research.Genet Med advance online publication 26 January 2017.

Indexed as

Gastrointestinal MicrobiomeMotivationPatient SelectionAdultAgedHealth SurveysHumansMiddle AgedPatient Participation

Identifiers

PMID28125088

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.