ArticleHealth expectations : an international journal of public participation in health care and health policy2017
A qualitative study exploring medication management in people with dementia living in the community and the potential role of the community pharmacist.
Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 43 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
43 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Role of informal carers in medication management for people with long-term conditions: a systematic review.BMJ open · 2025Pooled it
- Tools to evaluate medication management for caregivers of people living with dementia: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2021Pooled it
- Exploring how triads of people living with dementia, carers and health care professionals function in dementia health care: A systematic qualitative review and thematic synthesis.Dementia (London, England) · 2021Pooled it
- Needs Assessment of Safe Medicines Management for Older People With Cognitive Disorders in Home Care: An Integrative Systematic Review.Frontiers in neurology · 2021Pooled it
- Medicines management issues in dementia and coping strategies used by people living with dementia and family carers: A systematic review.International journal of geriatric psychiatry · 2018Pooled it
- Managing medications together: a qualitative study of collaboration between primary and secondary caregivers of older adults.BMC geriatrics · 2026Article
- Understanding the challenges of medicine optimisation among older people (aged 60 years and above) from ethnic minority communities with polypharmacy in primary care: a realist review protocol.Systematic reviews · 2025Article
- Article
- Feasibility and Acceptability of Engaging Care Partners of Persons Living With Dementia With Electronic Outreach for Deprescribing.The Gerontologist · 2025Article
- Understanding the burden and influencing factors in family caregivers' medication assistance for patients with dementia: a survey study.BMC geriatrics · 2024Article
- Medication management information priorities of people living with dementia and their carers: a scoping review.Age and ageing · 2024Article
- The impact of providing care for physical health in severe mental illness on informal carers: a qualitative study.BMC psychiatry · 2024Article
- Thematic Analysis of Alzheimer's Medication Management Discussion in a Non-Moderated Online Forum.Western journal of nursing research · 2024Article
- Article
- Carers' experiences and perspectives of the use of anticholinergic medications in people living with dementia: Analysis of an online discussion forum.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Community pharmacies as a place for informal carer support in mental health and wellbeing.International journal of clinical pharmacy · 2023Article
- Understanding the medication safety challenges for patients with mental illness in primary care: a scoping review.BMC psychiatry · 2023Article
- Helping the Helpers - A research protocol for user-centered technology to aid caregiver management of medications for people with Alzheimer's disease and related dementias.Research in social & administrative pharmacy : RSAP · 2022Article
- Pharmacist Intention to Provide Medication Therapy Management Services in Saudi Arabia: A Study Using the Theory of Planned Behaviour.International journal of environmental research and public health · 2022Article
- Evaluation of a community-based memory clinic in collaboration with local hospitals to support patients with memory decline.Journal of Taibah University Medical Sciences · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe prevalence of dementia is increasing rapidly. People with dementia may be prescribed complex medication regimens, which may be challenging for them and any carers involved to safely manage.
objectiveTo describe and understand the key challenges, in relation to medication issues, experienced by people with dementia and their informal carers dwelling in the community and the potential role of community pharmacists.
designQualitative semi-structured interviews.
participantsPeople with dementia, informal carers and health and social care professionals (HSCPs).
resultsThirty-one participants (eleven informal carers, four people with dementia and sixteen HSCPs) were interviewed. Three key themes were identified: the key challenges, improving medication management and the role of pharmacists. The caring role commonly included responsibility for medication management which created both practical problems and an emotional burden. This burden was worsened by any difficulty in obtaining support and if the person with dementia was on a complex regimen. Participants believed that the process could be improved by coordinated and on-going support from HSCPs, which should focus on the informal carer. Medication reviews, particularly when conducted in the home environment, could be helpful.
conclusionMedication management for people with dementia living in the community is a complex process, and informal carers have a key role, which they frequently find challenging. Community pharmacists could have an enhanced role in this area, but would need to work within a more multidisciplinary environment outside the pharmacy.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.