Evidence map›Paper›PMID 28104711›Full record

ArticleBMJ open2017

Māori patients' experiences and perspectives of chronic kidney disease: a New Zealand qualitative interview study.

Rachael C Walker, Shayne Walker, Rachael L Morton, Allison Tong, Kirsten Howard, Suetonia C Palmer

Open access · goldAbstract readMulticenter Study
PubMed Full text at PMC Publisher
In one paragraph

Article in BMJ open, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 9 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
28citing papers in PubMed, 9 pooled it
9.8field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

28 citing papers in PubMed, 9 syntheses or guidelines pooled it, 51 citations in OpenAlex.

  1. Pooled it
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  4. Patient engagement during the transition from nondialysis-dependent chronic kidney disease to dialysis: A meta-ethnography.Health expectations : an international journal of public participation in health care and health policy · 2023
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  13. Occupational Performance Coaching for Children With Neurodisability: A Randomized Controlled Trial Protocol.Canadian journal of occupational therapy. Revue canadienne d'ergotherapie · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 5 institutions in 2 countries.

Rachael C WalkerSydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia.
Shayne WalkerMaungaharuru-Tangitū Trust, Napier, New Zealand.
Rachael L MortonNHMRC Clinical Trials Centre, Sydney Medical School, University of Sydney, Camperdown, New South Wales, Australia.
Allison TongSydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia.
Kirsten HowardSydney School of Public Health, University of Sydney, Sydney, New South Wales, Australia.
Suetonia C PalmerDepartment of Medicine, University of Otago, Christchurch, New Zealand.
Children's Hospital at Westmead · AUHawke's Bay Hospital · NZNational Health and Medical Research Council · AUUniversity of Otago · NZUniversity of Sydney · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo explore and describe Māori (the indigenous people of New Zealand) patients' experiences and perspectives of chronic kidney disease (CKD), as these are largely unknown for indigenous groups with CKD.

designFace-to-face, semistructured interviews with purposive sampling and thematic analysis.

setting3 dialysis centres in New Zealand (NZ), all of which offered all forms of dialysis modalities.

participants13 Māori patients with CKD and who were either nearing the need for dialysis or had started dialysis within the previous 12 months.

resultsThe Māori concepts of whakamā (disempowerment and embarrassment) and whakamana (sense of self-esteem and self-determination) provided an overarching framework for interpreting the themes identified: disempowered by delayed CKD diagnosis (resentment of late diagnosis; missed opportunities for preventive care; regret and self-blame); confronting the stigma of kidney disease (multigenerational trepidation; shame and embarrassment; fear and denial); developing and sustaining relationships to support treatment decision-making (importance of family/whānau; valuing peer support; building clinician-patient trust); and maintaining cultural identity (spiritual connection to land; and upholding inner strength/mana).

conclusionsMāori patients with CKD experienced marginalisation within the NZ healthcare system due to delayed diagnosis, a focus on individuals rather than family, multigenerational fear of dialysis, and an awareness that clinicians are not aware of cultural considerations and values during decision-making. Prompt diagnosis to facilitate self-management and foster trust between patients and clinicians, involvement of family and peers in dialysis care, and acknowledging patient values could strengthen patient engagement and align decision-making with patient priorities.

Indexed as

AdultAgedCultureDecision MakingDelayed DiagnosisDenial, PsychologicalEmotionsFearFemaleHealthcare DisparitiesHealth Status DisparitiesHumansInterpersonal RelationsKidney Failure, ChronicMaleMiddle AgedNEPHROLOGYQUALITATIVE RESEARCH

Identifiers

PMID28104711
PMCPMC5253593
OpenAlexW2578607305

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.