ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2017
Are intensive data collection methods in pain research feasible in those with physical disability? A study in persons with chronic pain and spinal cord injury.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it, 17 citations in OpenAlex.
- Synthesis of evidence on the use of ecological momentary assessments to monitor health outcomes after traumatic injury: rapid systematic review.BMC medical research methodology · 2022Pooled it
- Completion and Compliance Rates for an Intensive mHealth Study Design to Promote Self-Awareness and Self-Care Among Care Partners of Individuals With Traumatic Brain Injury: Secondary Analysis of a Randomized Controlled Trial.JMIR mHealth and uHealth · 2025Trial
- An app-based just-in-time-adaptive self-management intervention for care partners: The CareQOL feasibility pilot study.Rehabilitation psychology · 2022Trial
- A comprehensive parent training program for parents of neurodivergent children with pathological demand avoidance: The Paradigm Shift ProgramPediatric investigation · 2026Article
- Use of the Roadmap positive activity app in daily life among dementia caregivers: evidence of feasibility and acceptability.Frontiers in dementia · 2026Article
- Measurement reactivity in ambulatory assessment: Increase in emotional clarity over time independent of sampling frequency.Behavior research methods · 2024Article
- Article
- Active or passive pain coping: Which predicts daily physical and psychosocial functioning in people with chronic pain and spinal cord injury?Rehabilitation psychology · 2022Observational
- Daily Variation in Sleep Quality is Associated With Health-Related Quality of Life in People With Spinal Cord Injury.Archives of physical medicine and rehabilitation · 2022Article
- How is quality of life defined and assessed in published research?Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Review
- Feasibility and acceptability of intensive longitudinal data collection of activity and patient-reported outcomes during chemotherapy for breast cancer.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Article
- The reliability of end of day and ecological momentary assessments of pain and pain interference in individuals with spinal cord injury.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2018Article
- Medicate or Meditate? Greater Pain Acceptance is Related to Lower Pain Medication Use in Persons With Chronic Pain and Spinal Cord Injury.The Clinical journal of pain · 2018Article
- Willingness to Participate in Longitudinal Research Among People with Chronic Pain Who Take Medical Cannabis: A Cross-Sectional Survey.Cannabis and cannabinoid research · 2018Article
Corrections and comments
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Authors and funding
3 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeIntensive repeated measures data collection procedures, such as ecological momentary assessment (EMA) and end-of-day (EOD) diaries, are becoming more prominent in pain research. Existing data on the feasibility of such methods is encouraging; however, almost nothing is known about feasibility in clinical populations with significant physical disabilities. Research methodology feasibility is crucial to the inclusion of individuals with physical disability in pain research given the high prevalence and impact of pain in these populations. The aim of this study was to examine study compliance, protocol acceptability, and reactivity of intensive data collection methods in adults with chronic pain and spinal cord injury (SCI).
methodsSecondary analysis of data from a 7-day EMA and EOD diary study in a sample of 131 community dwelling adults with SCI.
resultsResults showed rates of missing data ranged from 18.4 to 22.8% across measures. Participant compliance was related to time of day/presence of audible prompts, mobility aid use, race, and baseline levels of pain and pain interference, with more missing data at wake and bedtimes/no prompts, and for those who used hand-held mobility devices, identified as black/African American, and/or reported higher baseline pain and pain interference. Participants rated the study methodology as generally highly acceptable and expressed willingness to participate in similar studies of much longer duration. There was no evidence of reactivity, defined as temporal shifts in pain or pain interference ratings.
conclusionsOverall, intensive pain data collection is feasible in persons with SCI with no evidence that the methodology impacts pain intensity or pain interference ratings.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.