ArticleJournal of cancer survivorship : research and practice2017
Optimizing patient-reported outcome and risk factor reporting from cancer survivors: a randomized trial of four different survey methods among colorectal cancer survivors.
Article in Journal of cancer survivorship : research and practice, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Methods to increase response to postal and electronic questionnaires.The Cochrane database of systematic reviews · 2023Pooled it
- Completion and Compliance Rates for an Intensive mHealth Study Design to Promote Self-Awareness and Self-Care Among Care Partners of Individuals With Traumatic Brain Injury: Secondary Analysis of a Randomized Controlled Trial.JMIR mHealth and uHealth · 2025Trial
- Patient Preferences for Technology-Assisted Patient-Reported Outcomes Measurement of Mental Health Symptoms Among Veterans: Cross-Sectional Survey.Journal of participatory medicine · 2026Article
- Long-Term Patient-Reported Outcomes following Oncological Facial Reconstructive Surgery using the FACE-Q Skin Cancer Module.JPRAS open · 2024Article
- Survey response in colorectal surgery. A systematic review.Surgery in practice and science · 2022Review
- The association of bowel function, participation in life activities, and quality of life in rectal cancer survivors.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Article
- Response rate of patient reported outcomes: the delivery method matters.BMC medical research methodology · 2021Article
- Characterizing employment of colorectal cancer survivors using electronic health records.JAMIA open · 2021Article
- Colorectal Cancer and Return to Work: A Pilot Study of Recruiting Cancer Survivors and Their Employers.The Permanente journal · 2021Article
- Factors Influencing Exercise Following Pancreatic Tumor Resection.Annals of surgical oncology · 2021Article
- What Factors Are Associated With Response Rates for Long-term Follow-up Questionnaire Studies in Hand Surgery?Clinical orthopaedics and related research · 2020Article
- Impact of health-related stigma on psychosocial functioning in cancer patients: Construct validity of the stigma-related social problems scale.European journal of cancer care · 2020Article
- A population-based survey to assess the association between cannabis and quality of life among colorectal cancer survivors.BMC cancer · 2020Article
- The effect of multiple recruitment contacts on response rates and patterns of missing data in a survey of bladder cancer survivors 6 months after cystectomy.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- Variation in Colorectal Cancer Stage and Mortality across Large Community-Based Populations: PORTAL Colorectal Cancer Cohort.The Permanente journal · 2020Article
- Financial burden and quality of life among early-onset colorectal cancer survivors: A qualitative analysis.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- The Impact of Financial Toxicity on Psychological Well-Being, Coping Self-Efficacy, and Cost-Coping Behaviors in Young Adults with Cancer.Journal of adolescent and young adult oncology · 2019Article
- Evaluation of a Novel Financial Navigator Pilot to Address Patient Concerns about Medical Care Costs.The Permanente journal · 2019Article
- Health care improvement and survivorship priorities of colorectal cancer survivors: findings from the PORTAL colorectal cancer cohort survey.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
Corrections and comments
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Authors and funding
11 authors.
Funding
Abstract
purposeThe goal of this study was to determine response rates and associated costs of different survey methods among colorectal cancer (CRC) survivors.
methodsWe assembled a cohort of 16,212 individuals diagnosed with CRC (2010-2014) from six health plans, and randomly selected 4000 survivors to test survey response rates across four mixed-mode survey administration protocols (in English and Spanish): arm 1, mailed survey with phone follow-up; arm 2, interactive voice response (IVR) followed by mail; arm 3; email linked to web-based survey with mail follow-up; and arm 4, email linked to web-based survey followed by IVR.
resultsOur overall response rate was 50.2%. Arm 1 had the highest response rate (59.9%), followed by arm 3 (51.9%), arm 2 (51.2%), and arm 4 (37.9%). Response rates were higher among non-Hispanic whites in all arms than other racial/ethnic groups (p < 0.001), among English (51.5%) than Spanish speakers (36.4%) (p < 0.001), and among higher (53.7%) than lower (41.4%) socioeconomic status (p < 0.001). Survey arms were roughly comparable in cost, with a difference of only 8% of total costs between the most (arm 2) and least (arm 3) expensive arms.
conclusionsMailed surveys followed by phone calls achieved the highest response rate; email invitations and online surveys cost less per response. Electronic methods, even among those with email availability, may miss important populations including Hispanics, non-English speakers, and those of lower socioeconomic status. IMPLICATIONS FOR CANCER SURVIVORS: Our results demonstrate effective methods for capturing patient-reported outcomes, inform the relative benefits/disadvantages of the different methods, and identify future research directions.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.