ArticleJournal of acquired immune deficiency syndromes (1999)2017
"Out of Care" HIV Case Investigations: A Collaborative Analysis Across 6 States in the Northwest US.
Article in Journal of acquired immune deficiency syndromes (1999), 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
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Who cites it
23 citing papers in PubMed.
- Access to HIV care in jails: Perspectives from people living with HIV in North Carolina.PloS one · 2022Trial
- Advancing data to care strategies for persons with HIV using an innovative reconciliation process.PloS one · 2022Trial
- A Cluster Randomized Evaluation of a Health Department Data to Care Intervention Designed to Increase Engagement in HIV Care and Antiretroviral Use.Sexually transmitted diseases · 2018Trial
- New to cohort, not new to care: leveraging historical data in HIV clinical cohorts in the United States.American journal of epidemiology · 2026Article
- Brief Report: The Trials of Insurance-Based Data to Care-Rx: Low Enrollment in the Antiretroviral Improvement Among Medicaid EnrolleeS (AIMS) Study.Journal of acquired immune deficiency syndromes (1999) · 2026Article
- Pharmacy-Based Data to Care: Evaluation of a Public Health Initiative to Support HIV Medication Reinitiation.Sexually transmitted diseases · 2025Article
- Adopting Data to Care to Identify and Address Gaps in Services for Children and Adolescents Living With HIV in Mozambique.Global health, science and practice · 2024Article
- Viewpoint on Human Immunodeficiency Virus Medical Care Retention Guidelines in the Coronavirus 2019 Pandemic Era and Beyond: Lessons Learned From Electronic Health Record Screening and Outreach.Open forum infectious diseases · 2024Article
- Jail-Based Data-to-Care to Improve Continuity of HIV Care: Perspectives and Experiences from Previously Incarcerated Individuals.AIDS research and human retroviruses · 2021Article
- "Is a Bird in the Hand Worth 5 in the Bush?": A Comparison of 3 Data-to-Care Referral Strategies on HIV Care Continuum Outcomes in San Francisco.Open forum infectious diseases · 2020Article
- Falling Through the Cracks: Risk Factors for Becoming Lost to HIV Care After Incarceration in a Southern Jail.AIDS and behavior · 2020Article
- Comparing Methods for Record Linkage for Public Health Action: Matching Algorithm Validation Study.JMIR public health and surveillance · 2020Article
- A type II implementation-effectiveness hybrid quasi-experimental pilot study of a clinical intervention to re-engage people living with HIV into care, 'Lost & Found': an implementation science protocol.Pilot and feasibility studies · 2020Article
- Informing Data to Care: Contacting Persons Sampled for the Medical Monitoring Project.Journal of acquired immune deficiency syndromes (1999) · 2019Article
- CROI 2018: Advances in Antiretroviral Therapy.Topics in antiviral medicine · 2018Article
- The Max Clinic: Medical Care Designed to Engage the Hardest-to-Reach Persons Living with HIV in Seattle and King County, Washington.AIDS patient care and STDs · 2018Article
- Defining Care Patterns and Outcomes Among Persons Living with HIV in Washington, DC: Linkage of Clinical Cohort and Surveillance Data.JMIR public health and surveillance · 2018Article
- Promotion of Research on the HIV Continuum of Care in the United States: The CFAR HIV Continuum of Care/ECHPP Working Group.Journal of acquired immune deficiency syndromes (1999) · 2017Article
- Using HIV Surveillance Data to Link People to HIV Medical Care, 5 US States, 2012-2015.Public health reports (Washington, D.C. : 1974)Article
- Expanding Data to Care Programs to Improve HIV Care Continuum Among Men Who Have Sex With Men and Transgender Persons: Key Processes and Outcomes From Project PrIDE, 2015-2019.Public health reports (Washington, D.C. : 1974)Article
Corrections and comments
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Authors and funding
12 authors.
Funding
Abstract
backgroundHIV care continuum estimates derived from laboratory surveillance typically assume that persons without recently reported CD4 count or viral load results are out of care.
methodsWe conducted a multistate project (Alaska, Idaho, Montana, Oregon, Washington, and Wyoming) to ascertain the status of HIV cases that appeared to be out of care during a 12-month period. We used laboratory surveillance to identify cases in all states but Idaho, where viral load reporting is not mandatory, requiring us to rely on clinic records. After complete investigation, we assigned each case one of the following dispositions: moved out of state, died, in HIV care, no evidence of HIV care, or data error.
resultsWe identified 3866 cases with no CD4 count or viral load result in a ≥12-month period during 2012-2014, most (85%) of which were in Washington or Oregon. A median of 43% (range: 20%-67%) of cases investigated in each state had moved, 9% (0%-16%) had died, and 11% (8%-33%) were in care during the 12-month surveillance period. Only 28% of investigated cases in the region and a median of 30% (10%-57%) of investigated cases in each state had no evidence of care, migration, or death after investigation.
conclusionsMost persons living with HIV in the Northwest United States who appear to be out of care based on laboratory surveillance are not truly out of care. Our findings highlight the importance of improving state surveillance systems to ensure accurate care continuum estimates and guide Data to Care efforts.
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