ArticleJournal of public health management and practice : JPHMP
Validation of Retention in HIV Care Status Using the New York City HIV Surveillance Registry and Clinical Care Data From a Large HIV Care Center.
Article in Journal of public health management and practice : JPHMP. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Aligning definitions with realities: a qualitative study on the complexities of measuring retention in HIV care in the global context.BMJ open · 2026Article
- Recommendation on the use of viral load tests and exclusion of CD4 tests as proxies for HIV medical visits.Annals of epidemiology · 2025Article
- New York City HIV Care Continuum Dashboards: Using Surveillance Data to Improve HIV Care Among People Living With HIV in New York City.JMIR public health and surveillance · 2019Article
- Validation of CD4BMC infectious diseases · 2018Article
- The Facility-Level HIV Treatment Cascade: Using a Population Health Tool in Health Care Facilities to End the Epidemic in New York State.Open forum infectious diseases · 2018Article
- Using Registry Data to Construct a Comparison Group for Programmatic Effectiveness Evaluation: The New York City HIV Care Coordination Program.American journal of epidemiology · 2018Article
- Gaps Along the HIV Care Continuum: Findings Among a Population Seeking Sexual Health Care Services in New York City.Journal of acquired immune deficiency syndromes (1999) · 2018Article
- Short-term effectiveness of HIV care coordination among persons with recent HIV diagnosis or history of poor HIV outcomes.PloS one · 2018Observational
- Using HIV Surveillance Data to Link People to HIV Medical Care, 5 US States, 2012-2015.Public health reports (Washington, D.C. : 1974)Article
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Authors and funding
3 authors.
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No grant is acknowledged in the PubMed record.
Abstract
contextImproving retention in care is a key element of the National HIV/AIDS Strategy (NHAS). However, definitions for measuring retention in care are not standardized.
objectiveTo compare measures of retention based on both clinic visit data and HIV laboratory surveillance data.
designRetrospective cohort study.
settingNew York City (NYC), New York.
participantsWe matched adult patients with HIV infection seen at the Spencer Cox Center for Health (SCC) in 2010 or 2011 with the NYC HIV Surveillance Registry.
main outcome measuresRetention in care was measured on the basis of SCC electronic medical record (EMR) data (≥1 medical visits in 2012) and Surveillance Registry data (≥2 CD4/viral load [VL] tests ≥90 days apart in 2012).
resultsThere were 5746 adult HIV-infected patients seen at SCC between 2010 and 2011 who matched with the Surveillance Registry. Seventy-eight percent (n = 4469) had 1 or more medical visits at SCC in 2012 and were considered retained on the basis of the EMR definition, among which 3831 (86%) met the surveillance definition for retention in care. Patients who did not have a medical visit at SCC in 2012 (n = 1277) were lost to care in NYC (n = 485; 36%), engaged in care at an alternate provider (n = 622; 49%), or died after their last SCC visit (n = 197; 15%). IMPLICATIONS: This study is an important comparison of laboratory surveillance versus clinic visit-based measures of retention in care in an urban setting with the largest HIV epidemic in the country. Collaborative projects between local health departments and clinical care providers can help validate the care status of patients and inform the allocation of resources to reengage patients who are lost to care.
conclusionThe combined use of laboratory and clinic visit-based data to measure retention in care provides a more accurate representation of the care status of HIV-infected patients than use of a single data source alone. Routine sharing of data by public health institutions and clinical care providers would help target resources toward reengaging patients who are lost to care in jurisdictions with universal HIV-related laboratory reporting.
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