ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2017
Information-sharing challenges between adolescents with cancer, their parents and health care providers: a qualitative study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Pooled it
- Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review.Pediatric blood & cancer · 2022Pooled it
- Factors Affecting Adolescents' Willingness to Communicate Symptoms During Cancer Treatment: A Systematic Review from the Children's Oncology Group.Journal of adolescent and young adult oncology · 2019Pooled it
- Mobile-based blended learning improves human papillomavirus vaccine knowledge among nursing students: An experimental study.Journal of education and health promotion · 2026Article
- The implementation and strategy of triadic communication in pediatric oncology: a scoping review.Pediatric research · 2025Article
- Facilitators and barriers to parent-child communication in pediatric palliative care: An integrative review.International journal of nursing sciences · 2024Review
- Stigma in Pediatric Cancer: An Exploratory Study of Osteosarcoma and Retinoblastoma in Guatemala, Jordan, and Zimbabwe.JCO global oncology · 2024Article
- The Adolescent and Young Adult Needs Assessment & Service Bridge (NA-SB): A single-arm feasibility pilot study.Journal of psychosocial oncology · 2024Article
- A Qualitative Analysis of the Experiences of Young Patients and Caregivers Confronting Pediatric and Adolescent Oncology Diagnosis.International journal of environmental research and public health · 2023Article
- Communication and information sharing with pediatric patients including refugees with advanced cancer, their caregivers, and health care professionals in Jordan: a qualitative study.Frontiers in oncology · 2023Article
- An actionable needs assessment for adolescents and young adults with cancer: the AYA Needs Assessment & Service Bridge (NA-SB).Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Users' Willingness to Share Health Information in a Social Question-and-Answer Community: Cross-sectional Survey in China.JMIR medical informatics · 2021Article
- Effect of a self-help educational program with peer group on anxiety of mothers of children with cancer: A clinical trial study.Journal of education and health promotion · 2021Article
- Adolescents With Cancer Need Trustworthy Information and Prefer to Receive It From a Human Source Rather Than From the Internet: A Qualitative Study.Frontiers in psychology · 2021Article
- Psychosocial issues for adolescent and young adult cancer patients in a global context: A forward-looking approach.Pediatric blood & cancer · 2019Review
- Health professional perceptions of communicating with adolescents and young adults about bone cancer clinical trial participation.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2019Article
- Diminished Trust of Healthcare Providers, Risky Lifestyle Behaviors, and Low Use of Health Services: A Descriptive Study of Rural Adolescents.The Journal of school nursing : the official publication of the National Association of School Nurses · 2018Article
- Problem-solving skills, parent-adolescent communication, dyadic functioning, and distress among adolescents with cancer.Pediatric blood & cancer · 2018Article
- A Connectedness Primer for Healthcare Providers: Adolescents/Young Adult Cancer Survivors' Perspectives on Behaviors That Foster Connectedness During Cancer Treatment and the Resulting Positive Outcomes.Journal of adolescent and young adult oncology · 2018Article
- Accessibility and factors associated with utilization of mental health services in youth health centers. A qualitative comparative analysis in northern Sweden.International journal of mental health systems · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeWe aimed to assess the viewpoints, experiences, and preferences within the clinical communication triangle (parent, adolescent, health care team) concerning the information-sharing process for adolescents with cancer.
methodsThis is a qualitative descriptive-exploratory study. Overall, 33 participants were recruited (adolescents diagnosed with cancer aged 15-20 years, their parents, oncologists, and nurses). In-depth semi-structured interviews were conducted and data were analyzed using constant comparative analysis.
resultsData analysis yielded three main themes. Disaffiliation of adolescents in information-sharing process with three subthemes: confusion and unanswered questions; and, seeking information from inferior sources. Barriers to information-sharing with three subthemes: parents as gatekeepers in the information-sharing process, cultural background creating strong barriers for information-sharing, and the negative attitude of the medical team towards information-sharing. The last theme is cornerstones in information-sharing process with three subthemes: trust and honesty to enhance communication between adolescents and the medical team, the necessity of paving the way for information-sharing, and the value of gradual information-sharing based on the adolescents need and mental readiness.
conclusionParticipants believed that information-sharing was insufficient and provided recommendations for facilitating this process. Information-sharing process needs to be gradual and based on the adolescent's need and mental capacity. Future research needs to focus on devising a protocol for information-sharing with adolescents with cancer that accounts for familial and cultural factors, is carefully timed, and provides clearer and more efficacious communication between parents, adolescents, and the health care team.
Indexed as
Identifiers
28078477What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.