Observational studyBMC pulmonary medicine2017
What patients really think about asthma guidelines: barriers to guideline implementation from the patients' perspective.
Observational study in BMC pulmonary medicine, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Barriers and facilitators of effective self-management in asthma: systematic review and thematic synthesis of patient and healthcare professional views.NPJ primary care respiratory medicine · 2017Pooled it
- Implementation of Coach McLungsBMC medical informatics and decision making · 2022Trial
- A cost-effectiveness analysis comparing single-inhaler extrafine beclomethasone/formoterol/glycopyrronium bromide against other SITTs in adult patients with uncontrolled asthma in England.Health economics review · 2025Article
- Understanding the journeys of patients with an asthma exacerbation requiring urgent therapy at a primary care clinic.BMC pulmonary medicine · 2022Article
- Suboptimal Control of Asthma Among Diverse Patients: A US Mixed Methods Focus Group Study.Journal of asthma and allergy · 2022Article
- Caregivers' and healthcare professionals' perspective of barriers and facilitators to health service access for asthmatic children: a qualitative study.BMJ open respiratory research · 2021Article
- Real-World Evidence: Bridging Gaps in Evidence to Guide Payer Decisions.PharmacoEconomics - open · 2021Article
- Global Quality Statements on Reliever Use in Asthma in Adults and Children Older than 5 Years of Age.Advances in therapy · 2021Article
- Overcoming Barriers to the Effective Management of Severe Asthma in Italy.Journal of asthma and allergy · 2021Article
- Perspectives on decisions for treatment and care in severe asthma.The World Allergy Organization journal · 2021Review
- Overuse of reliever inhalers and associated healthcare utilization of asthma patients.Scientific reports · 2020Article
- Evaluation of a shared decision-making intervention for pediatric patients with asthma in the emergency department.Implementation science communications · 2020Article
- Understanding Patient Perspectives on Medication Adherence in Asthma: A Targeted Review of Qualitative Studies.Patient preference and adherence · 2020Review
- Participation factors for asthma education programs - a cross sectional survey.BMC pulmonary medicine · 2019Article
- "I did not know it was so important to take it the whole time" - self-reported barriers to medical treatment among individuals with asthma.BMC pulmonary medicine · 2019Article
- Evaluation of a shared decision-making communication skills training for physicians treating patients with asthma: a mixed methods study using simulated patients.BMC health services research · 2019Article
- How do and could clinical guidelines support patient-centred care for women: Content analysis of guidelines.PloS one · 2019Article
- What Means A Quality Professional-Patient Relationship From The Asthmatic Patients' Perspective? A Narrative Review Of Their Needs And Expectations.Patient preference and adherence · 2019Review
- Approaches to the assessment of severe asthma: barriers and strategies.Journal of asthma and allergy · 2019Article
- Technology use and preferences to support clinical practice guideline awareness and adherence in individuals with sickle cell disease.Journal of the American Medical Informatics Association : JAMIA · 2018Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundTreatment of asthma does not always comply with asthma guidelines (AG). This may be rooted in direct or indirect resistance on the doctors' and/or patients' side or be caused by the healthcare system. To assess whether patients' concepts and attitudes are really an implementation barrier for AG, we analysed the patients' perspective of a "good asthma therapy" and contrasted their wishes with current recommendations.
methodsUsing a qualitative exploratory design, topic centred focus group (FG) discussions were performed until theoretical saturation was reached. Inclusion criteria were an asthma diagnosis and age above 18. FG sessions were recorded audio-visually and analysed via a mapping technique and content analysis performed according to Mayring (supported by MAXQDA®). Participants' speech times and the proportion of time devoted to different themes were calculated using the Videograph System® and related to the content analysis.
resultsThirteen men and 24 women aged between 20 and 77 from rural and urban areas attended five FG. Some patients had been recently diagnosed with asthma, others years previously or in childhood. The following topics were addressed: (a) concern about or rejection of therapy components, particularly corticosteroids, which sometimes resulted in autonomous uncommunicated medication changes, (b) lack of time or money for optimal treatment, (c) insufficient involvement in therapy choices and (d) a desire for greater empowerment, (e) suboptimal communication between healthcare professionals and (f) difficulties with recommendations conflicting with daily life. Primarily, (g) participants wanted more time with doctors to discuss difficulties and (h) all aspects of living with an impairing condition.
conclusionsWe identified some important patient driven barriers to implementing AG recommendations. In order to advance AG implementation and improve asthma treatment, the patients' perspective needs to be considered before drafting new versions of AG. These issues should be addressed at the planning stage.
trial registrationDRKS00000562 (German Clinical Trials Registry).
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