ArticleAnnals of neurology2017
Eye-tracking-based assessment suggests preserved well-being in locked-in patients.
Article in Annals of neurology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed.
- Efficacy of different interaction devices using non-immersive virtual tasks in individuals with Amyotrophic Lateral Sclerosis: a cross-sectional randomized trial.BMC neurology · 2018Trial
- Between guidelines and reality: expert neurologists' perspectives on structural resources for ALS care in Germany.Neurological research and practice · 2026Article
- Multidisciplinary rehabilitation and eye tracker-assisted communication in locked-in syndrome: a case report and literature review.Frontiers in human neuroscience · 2026Article
- Stage-Based Communication Rehabilitation in Amyotrophic Lateral Sclerosis (ALS): A Review of Strategies for Enhancing Quality of Life.Archives of internal medicine research · 2025Article
- Impairment of oculomotor functions in patients with early to advanced amyotrophic lateral sclerosis.Journal of neurology · 2024Article
- Towards clinical application of implantable brain-computer interfaces for people with late-stage ALS: medical and ethical considerations.Journal of neurology · 2023Review
- Understanding the Psychological Well-being of Patients With Locked-in Syndrome: A Scoping Review.Cureus · 2023Article
- Well-being on supportive techniques in amyotrophic lateral sclerosis: from neurologists' perspective.Annals of clinical and translational neurology · 2022Article
- Methodological Recommendations for Studies on the Daily Life Implementation of Implantable Communication-Brain-Computer Interfaces for Individuals With Locked-in Syndrome.Neurorehabilitation and neural repair · 2022Article
- Quality of life and mental health in the locked-in-state-differences between patients with amyotrophic lateral sclerosis and their next of kin.Journal of neurology · 2022Article
- Exploratory evaluation of an eye-tracking system in patients with advanced spinal muscular atrophy type I receiving nusinersen.Frontiers in neurology · 2022Article
- Informal Caregiving in Amyotrophic Lateral Sclerosis (ALS): A High Caregiver Burden and Drastic Consequences on Caregivers' Lives.Brain sciences · 2021Article
- A Nation-Wide, Multi-Center Study on the Quality of Life of ALS Patients in Germany.Brain sciences · 2021Article
- Disease progression but not physical state per se determines mental wellbeing in ALS.Journal of neurology · 2020Article
- New technologies and Amyotrophic Lateral Sclerosis - Which step forward rushed by the COVID-19 pandemic?Journal of the neurological sciences · 2020Review
- An observational study on quality of life and preferences to sustain life in locked-in state.Neurology · 2019Observational
- The Dynamics of Attention Shifts Among Concurrent Speech in a Naturalistic Multi-speaker Virtual Environment.Frontiers in human neuroscience · 2019Article
- Ethical Principles in Patient-Centered Medical Care to Support Quality of Life in Amyotrophic Lateral Sclerosis.Frontiers in neurology · 2019Review
- Independent home use of a brain-computer interface by people with amyotrophic lateral sclerosis.Neurology · 2018Article
- Communication Matters-Pitfalls and Promise of Hightech Communication Devices in Palliative Care of Severely Physically Disabled Patients With Amyotrophic Lateral Sclerosis.Frontiers in neurology · 2018Review
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
We assessed quality of life (QoL) and psychological well-being in patients with amyotrophic lateral sclerosis-induced locked-in state and their next of kin in a fully unbiased manner using eye-tracking computer systems. Eleven of 30 screened patients and 9 next of kin completed study procedures. Patients reported good QoL, which appeared to be at the cost of the QoL of their next of kin. Next of kin rated their own or patients' QoL similarly, but they identified different areas as important as compared with patients. Our results are of importance for the discussion of end-of-life decisions and the evaluation of patients' presumed wishes as well as for psychosocial interventions. Ann Neurol 2017;81:310-315.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.