ReviewCurrent opinion in rheumatology2017
Incorporating the patient's perspective in outcomes research.
Review in Current opinion in rheumatology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it, 26 citations in OpenAlex.
- Outcome Metrics in the Treatment of Carpal Tunnel Syndrome: A Systematic Review.Hand (New York, N.Y.) · 2022Pooled it
- Why physicians underuse patient-reported outcomes in atopic dermatitis and chronic urticaria - Insights from the UCARE/ADCARE PROMUSE study.The World Allergy Organization journal · 2026Article
- Patients' coping strategies in the first 2 years of rheumatoid arthritis: a qualitative study.EULAR rheumatology open · 2025Article
- Understanding patient experiences to improve care for females groin hernia.Surgical endoscopy · 2025Article
- Lingering challenges in everyday life for adults under age 60 with hip fractures - a qualitative study of the lived experience during the first three years.International journal of qualitative studies on health and well-being · 2023Article
- Expectations of patients awaiting lung transplantation: A qualitative study.Nursing open · 2023Article
- Pediatric vascular anomalies in Austria. Where are we at? A survey among primary care pediatricians.Frontiers in pediatrics · 2023Article
- Improving diversity in study participation: Patient perspectives on barriers, racial differences and the role of communities.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Defining a Standard Set of Patient-Reported Outcomes for Patients With Advanced Ovarian Cancer.Frontiers in oncology · 2022Article
- Guided internet-based cognitive-behavioral therapy for patients with rheumatic conditions: A systematic review.Internet interventions · 2021Review
- Leveraging a qualitative data repository to integrate patient and caregiver perspectives into clinical research.Journal of clinical and translational science · 2021Article
- Article
- Methicillin-Resistant Staphylococcus aureus Eradication and Decolonization in Children Study (Part 2): Patient- and Parent-Centered Outcomes of Decolonization.Journal of participatory medicine · 2020Article
- "Mastering a New Life Situation" - Patients' Preferences of Treatment Outcomes in Early Rheumatoid Arthritis - A Longitudinal Qualitative Study.Patient preference and adherence · 2020Article
- Evaluation of the Feasibility of a Web-Based Survey to Assess Patient-Reported Symptom Improvement and Treatment Satisfaction Among Patients with Psoriatic Arthritis Receiving Secukinumab.Clinical drug investigation · 2019Article
- Article
- Clinical Improvements as Predictors of Improvements in Patient-Reported Outcomes: Post Hoc Analysis of a Randomized, Open-Label Study of Etanercept in Latin American Patients with Rheumatoid Arthritis.Open access rheumatology : research and reviews · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors at 1 institution in 1 country.
Funding
Abstract
purpose of reviewIncorporation of the patients' perspective in clinical research is critical to ensure that outcomes measured reflect those, which matter most to patients. This review summarizes recent efforts to include the patients' perspective in the development of outcome measures and the importance of encouraging patient participation in decision-making and self-management. RECENT
findingsSince the inclusion of fatigue as a patient-endorsed core outcome measure in rheumatoid arthritis (RA) trials, OMERACT has been instrumental in advocating for patient involvement in the development of core domains and instruments; current endeavors include cultivating an understanding of remission through the eyes of patients and gaining a sense of how to measure features of pain and 'stiffness' deemed as important to patients. The concept of remission was further explored in RA patients, highlighting a common goal of returning to normality; additionally, various tools have been developed to assess for unmet needs in rheumatology patients. Advances have also been made in the development and revision of patient-centered core measures in rheumatologic diagnoses outside of RA. SUMMARY: Incorporating the patients' perspective is now considered an essential feature in outcomes research. Future research should focus on how best to involve patients in specific research activities.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.