Trial reportJournal of autism and developmental disorders2017
Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial.
Trial report in Journal of autism and developmental disorders, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04173663 (Project ASSIST), which is not on this map. Cited by 41 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Project ASSIST: Advocating for Supports to Improve Service Transitions
Who cites it
41 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Siblings of Persons with Disabilities: A Systematic Integrative Review of the Empirical Literature.Clinical child and family psychology review · 2025Pooled it
- Interventions to Improve Outcomes for Parents of Children with Autism Spectrum Disorder: A Meta-Analysis.Journal of autism and developmental disorders · 2022Pooled it
- The Effect of a Parent Advocacy Intervention on Service Access for Autistic Youth: The Moderating Role of Baseline Advocacy Ability.Autism research : official journal of the International Society for Autism Research · 2026Trial
- Testing an Advocacy Program to Improve Service Access Among Latino Families of Autistic Youth: A Randomized Controlled Trial.Autism research : official journal of the International Society for Autism Research · 2025Trial
- Improving parents' ability to advocate for services for youth with autism: A randomized clinical trial.Autism research : official journal of the International Society for Autism Research · 2023Trial
- Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access During the Transition to Adulthood for Youth with ASD.Journal of autism and developmental disorders · 2022Trial
- Strategies and Tools to Aid the Transition Between Paediatric and Adult Health Services for Young Adults With Neurodevelopmental Conditions: A Scoping Review.Journal of paediatrics and child health · 2026Article
- Planning for the Transition to Adulthood: Parent Perspectives on the Planning Process and Experiences of Young Adults with Fragile X Syndrome.Advances in neurodevelopmental disorders · 2026Article
- On the Road or on the Web: A Pilot Study of a Mobile Clinic and Telehealth for Autism Assessment in Rural Communities.Practice innovations (Washington, D.C.) · 2026Article
- Identifying relations between child adaptive functioning, parent empowerment, and advocacy among families of young autistic children.Research and practice in intellectual and developmental disabilities · 2025Article
- Navigating Adult Disability Services by Latino Families of Youth with Autism.Journal of developmental and physical disabilities · 2025Article
- Improving the cultural responsiveness of measures for Latino families of children with autism.Journal of developmental and physical disabilities · 2025Article
- The Role of Parent Advocacy in Autistic Youths' Self-Determination.American journal on intellectual and developmental disabilities · 2025Article
- Exploring Parent and Autistic Youth Perspectives to Inform Adaptations for an Advocacy Program.Journal of developmental and physical disabilities · 2025Article
- Siblings FORWARD: Development of a New Program to Engage Siblings of Autistic Adults in Future Planning.Journal of autism and developmental disorders · 2025Article
- Leveraging Feedback From Families of Children With Autism to Create Digital Support for Service Navigation: Descriptive Study.JMIR formative research · 2024Article
- Exploring the Involvement of Autistic Youth in Decision Making About Services.Intellectual and developmental disabilities · 2024Article
- A Qualitative Examination of the Impact of COVID-19 on Transition Services for Autistic Youth.Journal of autism and developmental disorders · 2024Article
- Examining the associations among knowledge, empowerment, and advocacy among parents of transition-aged youth with autism.Autism : the international journal of research and practice · 2024Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services-the Volunteer Advocacy Program-Transition (VAP-T). Participants included 41 parents of youth with ASD within 2 years of high school exit, randomly assigned to a treatment (N = 20) or wait-list control (N = 21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.