ArticleJournal of the American Medical Informatics Association : JAMIA2017
From loquacious to reticent: understanding patient health information communication to guide consumer health IT design.
Article in Journal of the American Medical Informatics Association : JAMIA, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- Macroergonomic components of the patient work system shaping dyadic care management during adolescence: a case study of type 1 diabetes.Ergonomics · 2024Article
- Designing for caregiving networks: a case study of primary caregivers of children with medical complexity.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Establishing the Need for Anticipatory Symptom Guidance and Networked Models of Disease in Adaptive Family Management Among Children With Medical Complexity: Qualitative Study.JMIR formative research · 2023Article
- Review
- The Application of Digital Technologies and Artificial Intelligence in Healthcare: An Overview on Nutrition Assessment.Diseases (Basel, Switzerland) · 2023Article
- Article
- The Need for Ethnoracial Equity in Artificial Intelligence for Diabetes Management: Review and Recommendations.Journal of medical Internet research · 2021Review
- Development and Validation of Peer Relationship Scale for Chinese Community-Dwelling Elderly.Psychology research and behavior management · 2021Article
- A Sociotechnical Systems Approach Toward Tailored Design for Personal Health Information Management.Patient experience journal · 2020Article
- Artificial Intelligence for Diabetes Management and Decision Support: Literature Review.Journal of medical Internet research · 2018Review
- Mechanisms of Communicating Health Information Through Facebook: Implications for Consumer Health Information Technology Design.Journal of medical Internet research · 2016Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
background and significanceIt is increasingly recognized that some patients self-manage in the context of social networks rather than alone. Consumer health information technology (IT) designed to support socially embedded self-management must be responsive to patients' everyday communication practices. There is an opportunity to improve consumer health IT design by explicating how patients currently leverage social media to support health information communication.
objectiveThe objective of this study was to determine types of health information communication patterns that typify Facebook users with chronic health conditions to guide consumer health IT design. MATERIALS AND
methodsSeven hundred participants with type 2 diabetes were recruited through a commercial survey access panel. Cluster analysis was used to identify distinct approaches to health information communication both on and off Facebook. Analysis of variance (ANOVA) methods were used to identify demographic and behavioral differences among profiles. Secondary analysis of qualitative interviews ( n = 25) and analysis of open-ended survey questions were conducted to understand participant rationales for each profile.
resultsOur analysis yielded 7 distinct health information communication profiles. Five of 7 profiles had consistent patterns both on and off Facebook, while the remaining 2 demonstrated distinct practices, with no health information communication on Facebook but some off Facebook. One profile was distinct from all others in both health information communication practices and demographic composition. Rationales for following specific health information communication practices were categorized under 6 themes: altruism, instrumental support, social support, privacy and stigma, convenience, and Facebook knowledge.
conclusionFacebook has been widely adopted for health information communication; This study demonstrates that Facebook has been widely adopted for health information communication. It also shows that the ways in which patients communicate health information on and off Facebook are diverse.
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