ArticleJournal of pain and symptom management2017
Parental Concordance Regarding Problems and Hopes for Seriously Ill Children: A Two-Year Cohort Study.
Article in Journal of pain and symptom management, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Parental hope in paediatric palliative care: a systematic review of the ethical issues in evidence-based literature.BMC medical ethics · 2026Pooled it
- Hope in Pediatric Palliative Care: A Systematic Review.Children (Basel, Switzerland) · 2026Review
- Evaluating quality of life in pediatric palliative care: a cross-sectional analysis of children's and parents' perspectives.European journal of pediatrics · 2024Article
- Trust in Physicians, Anxiety and Depression, and Decision-Making Preferences among Parents of Children with Serious Illness.Journal of palliative medicine · 2022Article
- Conflicting goals and obligations: Tensions affecting communication in pediatric oncology.Patient education and counseling · 2022Article
- Parental views on communication between children and clinicians in pediatric oncology: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Providing Palliative and Hospice Care to Children, Adolescents and Young Adults with Cancer.Seminars in oncology nursing · 2021Review
- Communication in Pediatric Oncology: A Qualitative Study.Pediatrics · 2020Article
- Differing needs of mothers and fathers during their child's end-of-life care: secondary analysis of the "Paediatric end-of-life care needs" (PELICAN) study.BMC palliative care · 2020Article
- The Association of Perceived Social Support with Anxiety over Time in Parents of Children with Serious Illnesses.Journal of palliative medicine · 2020Article
- A conceptual model of barriers and facilitators to primary clinical teams requesting pediatric palliative care consultation based upon a narrative review.BMC palliative care · 2019Review
- Challenges and Priorities for Pediatric Palliative Care Research in the U.S. and Similar Practice Settings: Report From a Pediatric Palliative Care Research Network Workshop.Journal of pain and symptom management · 2019Article
- Changes Over Time in Good-Parent Beliefs Among Parents of Children With Serious Illness: A Two-Year Cohort Study.Journal of pain and symptom management · 2019Article
- Changes in Parental Hopes for Seriously Ill Children.Pediatrics · 2018Article
- Parents' Expressions of Concerns and Hopes for the Future and Their Concomitant Assessments of Disability in Their Children.Clinical medicine insights. Pediatrics · 2018Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
contextParents of a seriously ill child may have different concerns and hopes for their child, and these concerns and hopes may change over time.
objectivesIn a mixed-method prospective cohort of parental dyads of children with serious illness, to describe the major problems and hopes perceived for their child, examine the degree of concordance between parents, and assess whether prevalence and concordance change over time.
methodsEighty-four parents (42 dyads) of seriously ill children reported the major problems and hopes for their children at baseline. Thirty-two parents (16 dyads) answered the same questions at 24 months. Problems and hopes were classified into nine domains. Observed concordance was calculated between parents on each domain. Data for parents of 11 children who died are reported separately.
resultsThe most common major problem and hope domains at baseline were physical body, quality of life, future health and well-being, and medical care. Parental dyads demonstrated a moderately high percentage of concordance (69%) regarding reported problem domains and a slightly lower percentage of concordance on hopes (61%), with higher concordance for more common domains. Domain prevalence and concordance changed considerably at 24 months. Parents of children who later died showed markedly different patterns of domain prevalence and more extreme patterns of concordance.
conclusionParents of children with serious illness may have different perspectives regarding major problems and hopes, and these perspectives change over time. Parents of sicker children are more likely to be in either complete agreement or disagreement regarding the problems and hopes they identify.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.