Evidence map›Paper›PMID 28062345›Full record

ArticleJournal of pain and symptom management2017

Tumor Talk and Child Well-Being: Perceptions of "Good" and "Bad" News Among Parents of Children With Advanced Cancer.

Angela M Feraco, Veronica Dussel, Liliana Orellana, Tammy I Kang, J Russell Geyer, Abby R Rosenberg, Chris Feudtner, Joanne Wolfe

Open access · bronzeAbstract read
In one paragraph

Article in Journal of pain and symptom management, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed, 1 pooled it
3.7field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 1 synthesis or guideline pooled it, 19 citations in OpenAlex.

  1. Pooled it
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  3. Review
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  8. Article
  9. Assessment of health-related quality of life among parents of children with solid tumors in Serbia.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 5 institutions in 3 countries.

Angela M FeracoDana-Farber Cancer Institute, Boston Children's Hospital and Harvard Medical School, Boston, Massachusetts, USA; Ariadne Labs, Brigham and Women's Hospital and Harvard T.H. Chan School of Public Health, Boston, Massachusetts, USA. Electronic address: Angela_Feraco@dfci.harvard.edu.
Veronica DusselDana-Farber Cancer Institute, Boston Children's Hospital and Harvard Medical School, Boston, Massachusetts, USA; Center for Research and Implementation in Palliative Care, Institute for Clinical Effectiveness and Health Policy, Buenos Aires, Argentina.
Liliana OrellanaBiostatistics Unit, Deakin University, Geelong, Victoria, Australia.
Tammy I KangChildren's Hospital of Philadelphia and University of Pennsylvania, Philadelphia, Pennsylvania, USA; Texas Children's Hospital, Baylor College of Medicine, Houston, Texas, USA.
J Russell GeyerFred Hutchinson Cancer Research Center, Seattle Children's Hospital and University of Washington, Seattle, Washington, USA.
Abby R RosenbergFred Hutchinson Cancer Research Center, Seattle Children's Hospital and University of Washington, Seattle, Washington, USA.
Chris FeudtnerChildren's Hospital of Philadelphia and University of Pennsylvania, Philadelphia, Pennsylvania, USA.
Joanne WolfeDana-Farber Cancer Institute, Boston Children's Hospital and Harvard Medical School, Boston, Massachusetts, USA.
Boston Children's Hospital · USChildren's Hospital of Philadelphia · USSeattle Children's Hospital · USBrigham and Women's Hospital · USDeakin University · AU

Funding

PATHOPHYSIOLOGY OF HUMAN BLOOD CELLST32HL007574 · NHLBI · CHILDREN'S HOSPITAL BOSTON · PI Daniel Evan Bauer · 1985 to 2026
$18.4M
Improving Care for Children with Advanced CancerK07CA096746 · NCI · DANA-FARBER CANCER INSTITUTE · PI WOLFE, JOANNE · 2002 to 2006
$678k
NCI NIH HHS K07 CA096746NHLBI NIH HHS T32 HL007574
6 · The paper itself

Abstract

contextLittle is known about how parents of children with advanced cancer classify news they receive about their child's medical condition.

objectiveTo develop concepts of "good news" and "bad news" in discussions of advanced childhood cancer from parent perspectives.

methodsParents of children with advanced cancer cared for at three children's hospitals were asked to share details of conversations in the preceding three months that contained "good news" or "bad news" related to their child's medical condition. We used mixed methods to evaluate parent responses to both open-ended and fixed-response items.

resultsOf 104 enrolled parents, 86 (83%) completed the survey. Six (7%) parents reported discussing neither good nor bad news, 18 (21%) reported only bad news, 15 (17%) reported only good news, and 46 (54%) reported both good and bad news (one missing response). Seventy-six parents (88%) answered free-response items. Descriptions of both good and bad news discussions consisted predominantly of "tumor talk" or cancer control. Additional treatment options featured prominently, particularly in discussions of bad news (42%). Child well-being, an important good news theme, encompassed treatment tolerance, symptom reduction, and quality of life.

conclusionA majority of parents of children with advanced cancer report discussing both good and bad news in the preceding three months. Although news related primarily to cancer control, parents also describe good news discussions related to their child's well-being. Understanding how parents of children with advanced cancer classify and describe the news they receive may enhance efforts to promote family-centered communication.

Indexed as

Parent-Child RelationsTruth DisclosureAccess to InformationAdultChildChild HealthChild, PreschoolChild WelfareFemaleHumansMaleNeoplasmsParentsProfessional-Family RelationsQuality of LifeYoung Adultadvanced childhood cancerbad newsGood newshopeparental perceptionstumor talk

Identifiers

PMID28062345
PMCPMC5410177
OpenAlexW2569058665

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.