Evidence map›Paper›PMID 28062339›Full record

ArticleJournal of pain and symptom management2017

Defining Advance Care Planning for Adults: A Consensus Definition From a Multidisciplinary Delphi Panel.

Rebecca L Sudore, Hillary D Lum, John J You, Laura C Hanson, Diane E Meier, Steven Z Pantilat, Daniel D Matlock, Judith A C Rietjens, Ida J Korfage, Christine S Ritchie and 5 more

4 registry-linked trialsOpen access · bronzeAbstract readConsensus Statement
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of pain and symptom management, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 4 registered trials, which are not on this map. Cited by 730 papers, 12 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
730citing papers in PubMed, 12 pooled it
109.4field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03239639 nacompletednot on this mapstarted 2018, after this paper: background citation

A Randomized Control Trial of an Advance Care Planning Intervention to Engaged Substitute Decision-makers in Primary Care

TypeinterventionalSponsorMcMaster UniversityRan2018 to 2019Enrolled61ConditionsChronic IllnessArmsAdvance care planning education session, Wait list control
NCT03434626 nacompletednot on this map

A Randomized Trial of ACP/GCD Care Pathway in Primary Care in Alberta

TypeinterventionalSponsorMcMaster UniversityRan2017 to 2018Enrolled120ConditionsChronic Illness, ComorbiditiesArmsACP Education, Usual care
NCT05240664 nacompletednot on this mapstarted 2021, after this paper: background citation

Effects of An Advance Care Planning Programme for Persons With Early Dementia And Their Family Caregivers in the Community

TypeinterventionalSponsorHong Kong Metropolitan UniversityRan2021 to 2021Enrolled60ConditionsDementia, MildArmsHave A Say Programme, Attention-control health talks
NCT05426330 unknown statusnot on this mapstarted 2021, after this paper: background citation

Cross-sectional, Observational Study of Advanced Cancer Patients' and Their Primary Caregivers' Willingness to Communicate About Advance Care Planning (ACP)

TypeobservationalSponsorJules Bordet InstituteRan2021 to 2024Enrolled600ConditionsAdvanced Cancer
3 · Its place in the literature

Who cites it

730 citing papers in PubMed, 12 syntheses or guidelines pooled it, 1,653 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. [Evidence on Advance Care Planning for People with Dementia - A Systematic Review (2017-2023)].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2026
    Pooled it
  5. Pooled it
  6. Pooled it
  7. Pooled it
  8. Pooled it
  9. Pooled it
  10. Pooled it
  11. Pooled it
  12. Pooled it
  13. Trial
  14. Trial
  15. Trial
  16. Trial
  17. Trial
  18. Trial
  19. Trial
  20. Trial

670 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors at 11 institutions in 3 countries.

Rebecca L SudoreDivision of Geriatrics, Department of Medicine, University of California, San Francisco, California, USA; San Francisco Veterans Affairs Medical Center, San Francisco, California, USA. Electronic address: rebecca.sudore@ucsf.edu.
Hillary D LumVA Eastern Colorado Geriatrics Research Education and Clinical Center (GRECC), Denver, Colorado, USA; Division of Geriatric Medicine, Department of Medicine, University of Colorado School of Medicine, Aurora, Colorado, USA.
John J YouDepartment of Medicine, McMaster University, Hamilton, Ontario, Canada; Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, Ontario, Canada.
Laura C HansonDivision of Geriatric Medicine, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
Diane E MeierBrookdale Department of Geriatrics and Palliative Medicine, Icahn School of Medicine at Mount Sinai, New York, New York, USA.
Steven Z PantilatPalliative Care Program, Division of Hospital Medicine, Department of Medicine, University of California, San Francisco, California, USA.
Daniel D MatlockVA Eastern Colorado Geriatrics Research Education and Clinical Center (GRECC), Denver, Colorado, USA; Division of Geriatric Medicine, Department of Medicine, University of Colorado School of Medicine, Aurora, Colorado, USA.
Judith A C RietjensDepartment of Public Health, Erasmus University Medical Center, Rotterdam, The Netherlands.
Ida J KorfageDepartment of Public Health, Erasmus University Medical Center, Rotterdam, The Netherlands.
Christine S RitchieDivision of Geriatrics, Department of Medicine, University of California, San Francisco, California, USA.
Jean S KutnerDivision of General Internal Medicine, Department of Medicine, University of Colorado School of Medicine, Aurora, Colorado, USA.
Joan M TenoDivision of Gerontology and Geriatrics, University of Washington, Seattle, Washington, USA.
Judy ThomasCoalition for Compassionate Care of California, Sacramento, California, USA.
Ryan D McMahanDivision of Geriatrics, Department of Medicine, University of California, San Francisco, California, USA.
Daren K HeylandDepartment of Critical Care Medicine, Queen's University; Clinical Evaluation Research Unit, Kingston General Hospital, Kingston, Ontario, Canada.
University of California, San Francisco · USErasmus MC · NLGeriatric Research Education and Clinical Center · USCoalition for Compassionate Care of California · USIcahn School of Medicine at Mount Sinai · USMcMaster University · CAQueen's University · CASan Francisco VA Medical Center · USUniversity of Colorado Denver · USUniversity of North Carolina at Chapel Hill · USUniversity of Washington · US

Funding

Refinement and Expansion of the Palliative Care Research Cooperative Group (PCRC)U24NR014637 · NINR · DUKE UNIVERSITY · PI KUTNER, JEAN S, POLLAK, KATHRYN I · 2013 to 2017
$9.6M
Palliative Care Research Cooperative Group (PCRC): Refinement and ExpansionU2CNR014637 · NINR · UNIVERSITY OF COLORADO DENVER · PI KUTNER, JEAN S, POLLAK, KATHRYN I · 2018 to 2022
$8.6M
Improving advance care planning for seniors at risk for Alzheimers disease and related dementias and their caregiversR01AG045043 · NIA · NORTHERN CALIFORNIA INSTITUTE/RES/EDU · PI SUDORE, REBECCA L · 2013 to 2017
$3.2M
Mentoring Researchers in Advance Care Planning for Underrepresented Older Adults at Risk for Alzheimer’s Disease and Related Dementias and Their CaregiversK24AG054415 · NIA · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI REBECCA L SUDORE · 2017 to 2026
$1.7M
Refining an Advance Care Planning Group Visit intervention – a novel intervention to engage older adults in advance care planningK76AG054782 · NIA · UNIVERSITY OF COLORADO DENVER · PI LUM, HILLARY · 2016 to 2019
$864k
NIA NIH HHS K24 AG054415NIA NIH HHS K76 AG054782NIA NIH HHS R01 AG045043NINR NIH HHS U24 NR014637NINR NIH HHS U2C NR014637
6 · The paper itself

Abstract

contextDespite increasing interest in advance care planning (ACP) and previous ACP descriptions, a consensus definition does not yet exist to guide clinical, research, and policy initiatives.

objectiveThe aim of this study was to develop a consensus definition of ACP for adults.

methodsWe convened a Delphi panel of multidisciplinary, international ACP experts consisting of 52 clinicians, researchers, and policy leaders from four countries and a patient/surrogate advisory committee. We conducted 10 rounds using a modified Delphi method and qualitatively analyzed panelists' input. Panelists identified several themes lacking consensus and iteratively discussed and developed a final consensus definition.

resultsPanelists identified several tensions concerning ACP concepts such as whether the definition should focus on conversations vs. written advance directives; patients' values vs. treatment preferences; current shared decision making vs. future medical decisions; and who should be included in the process. The panel achieved a final consensus one-sentence definition and accompanying goals statement: "Advance care planning is a process that supports adults at any age or stage of health in understanding and sharing their personal values, life goals, and preferences regarding future medical care. The goal of advance care planning is to help ensure that people receive medical care that is consistent with their values, goals and preferences during serious and chronic illness." The panel also described strategies to best support adults in ACP.

conclusionsA multidisciplinary Delphi panel developed a consensus definition for ACP for adults that can be used to inform implementation and measurement of ACP clinical, research, and policy initiatives.

Indexed as

Advance Care PlanningChronic DiseaseDelphi TechniqueTerminology as TopicAdultDecision MakingFemaleHumansInterdisciplinary ResearchInternationalityMaleAdvance care planningconsensusDelphi techniquepolicy making

Identifiers

PMID28062339
PMCPMC5728651
OpenAlexW2571458453

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.