ArticleHealth information and libraries journal2017
Development and testing of a medline search filter for identifying patient and public involvement in health research.
Article in Health information and libraries journal, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
31 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Towards conceptualizing patients as partners in health systems: a systematic review and descriptive synthesis.Health research policy and systems · 2023Pooled it
- Exploring the theory, barriers and enablers for patient and public involvement across health, social care and patient safety: a systematic review of reviews.Health research policy and systems · 2021Pooled it
- Black and minority ethnic group involvement in health and social care research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2018Pooled it
- Extent, quality and impact of patient and public involvement in antimicrobial drug development research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2018Pooled it
- Which Theoretical Models or Frameworks Are Used to Understand Trauma-Informed Care in Mental Health Settings? A Scoping Review.International journal of mental health nursing · 2026Article
- Questions for more insightful and useful analyses of barriers and facilitators to public involvement and engagement in health research: a critical narrative review.Research involvement and engagement · 2026Review
- Rights-Based Involvement of People With Lived Experience in Pre-Registration Occupational Therapy Education: A Scoping Review Protocol.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Giving credit where credit's due - recognition of patient partners in health research.Research involvement and engagement · 2026Article
- The perspectives of people with lived experience, families, and researchers with the manuscript writing process in mental health and substance use research: a qualitative study.Research involvement and engagement · 2025Article
- Systematic Review of Patient and Caregiver Involvement in CKD Research.Kidney international reports · 2025Article
- Article
- A Bibliometric Analysis of Healthcare Intervention-Related Studies Reporting Patient and Public Involvement and Engagement.Healthcare (Basel, Switzerland) · 2025Review
- Mapping the evidence for patient and public involvement and engagement in statistical methodology research: A scoping review protocol.PloS one · 2025Article
- Commissioning and co-production in health and care services in the United Kingdom and Ireland: An exploratory literature review.Health expectations : an international journal of public participation in health care and health policy · 2024Review
- Searching for the social determinants of health: observations from evidence synthesis publications.Systematic reviews · 2024Article
- Meeting a need: development and validation of PubMed search filters for immigrant populations.Journal of the Medical Library Association : JMLA · 2024Article
- Roles, outcomes, and enablers within research partnerships: A rapid review of the literature on patient and public involvement and engagement in health research.Research involvement and engagement · 2023Review
- How do patients and other members of the public engage with the orphan drug development? A narrative qualitative synthesis.Orphanet journal of rare diseases · 2023Review
- Researchers' experiences with patient engagement in health research: a scoping review and thematic synthesis.Research involvement and engagement · 2023Article
- Patient and Public Involvement in Occupational Therapy Health Research: A Scoping Review.OTJR : occupation, participation and health · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundResearch involving the public as partners often proves difficult to locate due to the variations in terms used to describe public involvement, and inability of medical databases to index this concept effectively.
objectiveTo design a search filter to identify literature where patient and public involvement (PPI) was used in health research.
methodsA reference standard of 172 PPI papers was formed. The references were divided into a development set and a test set. Search terms were identified from common words, phrases and synonyms in the development set. These terms were combined as a search strategy for medline via OvidSP, which was then tested for sensitivity against the test set. The resultant search filter was then assessed for sensitivity, specificity and precision using a previously published systematic review.
resultsThe search filter was found to be highly sensitive 98.5% in initial testing. When tested against results generated by a 'real-life' systematic review, the filter had a specificity of 81%. However, sensitivity dropped to 58%. Adjustments to the population group of terms increased the sensitivity to 73%.
conclusionThe PPI filter designed for medline via OvidSP could aid information specialists and researchers trying to find literature specific to PPI.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.