ArticleCMAJ open
Pediatric palliative care in Canada in 2012: a cross-sectional descriptive study.
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22citing papers in PubMed, 1 pooled it
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Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review.Palliative medicine · 2020Pooled it
- Communication Barriers and Facilitators to Specialist Pediatric Palliative Care Involvement in Pediatric Oncology Settings Across Canada.Psycho-oncology · 2026Article
- A call for equity-informed pediatric palliative care in Canada.Paediatrics & child health · 2026Article
- The Lived Experiences of Hospice Healthcare Workers Caring for Adolescents and Young Adults With Advanced Cancer: An Interpretative Phenomenological Analysis.Journal of palliative care · 2026Article
- Specialist paediatric palliative care program development in the standard-of-care era.Paediatrics & child health · 2025Article
- Pediatric Oncology Hospice: A Comprehensive Review.The American journal of hospice & palliative care · 2024Review
- Les objectifs des échanges sur les soins et de la planification préalable des soins chez les patients d'âge pédiatrique atteints d'une maladie grave.Paediatrics & child health · 2024Review
- Goals of care conversations and advance care planning for paediatric patients living with serious illness.Paediatrics & child health · 2024Review
- Examining emotional and behavioural trajectories in siblings of children with life-limiting conditions.BMC palliative care · 2024Article
- Dying, dependency and death: Exploring palliative care access gaps for children.Wellcome open research · 2024Article
- The meaning of dying and death for children, their carers, and families: a scoping review.BMC palliative care · 2023Article
- Intensity of end-of-life care among children with life-threatening conditions: a national population-based observational study.BMC pediatrics · 2023Observational
- Developing competencies for volunteer navigators to support caregivers of children living with medical complexity: a mixed-method e-Delphi study.Palliative care and social practice · 2023Article
- Pediatric palliative care for children with cancer: a concept analysis using Rodgers' evolutionary approach.World journal of pediatrics : WJP · 2022Review
- The First Step to Initiate Pediatric Palliative Care: Identify Patient Needs and Cooperation of Medical Staff.Healthcare (Basel, Switzerland) · 2022Article
- Pediatric Project ECHOJournal of palliative medicine · 2021Article
- Medical assistance in dying: A paediatric perspective.Paediatrics & child health · 2018Review
- Emerging Methodologies in Pediatric Palliative Care Research: Six Case Studies.Children (Basel, Switzerland) · 2018Review
- Article
- Paediatric euthanasia in Canada: New challenges for end of life care.Paediatrics & child healthArticle
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Authors and funding
14 authors.
Kimberley WidgerLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Dawn DaviesLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Adam RapoportLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Christina VadeboncoeurLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Stephen LibenLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Amrita SarpalLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Simone StenekesLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Claude CyrLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Lysanne DaoustLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Marie-Claude GrégoireLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Marli RobertsonLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Heather Hodgson-VidenLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Julie LaflammeLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Harold SidenLawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPediatric palliative care focuses on comprehensive symptom management and enhancing quality of life for children with life-threatening conditions and their families. Our aim was to describe Canadian programs that provided specialized pediatric palliative care in 2012 and the children who received it and to estimate the proportion of children who might benefit that received specialized care.
methodsA cross-sectional descriptive design was used. Specialized pediatric palliative care programs were included in the study if they offered multidisciplinary consulting pediatric palliative care services to a wide range of children and served all populations of children with life-threatening illness regardless of diagnosis. Investigators in programs that had taken part in a prior study were invited to participate. New programs that met the inclusion criteria were identified through snowball sampling within pediatric palliative care networks. Program data were obtained via surveys with coinvestigators, and health record reviews were used to obtain information about the children who received care through the programs.
resultsAll 13 programs identified, including 3 with a free-standing hospice, agreed to take part in the study. Of the 1401 children who received care, 508 (36.2%) were under 1 year of age, and 504 (36.0%) had a congenital illness or condition originating in the perinatal period. Of the 431 children who died in 2012, 105 (24.4%) died in a critical care setting. Programs with a hospice provided care to 517 children (36.9%). Children in this group tended to be older, more often had a neurologic illness and received care for a longer time than those who received care from programs without a hospice. Overall, 18.6% (95% confidence interval 17.1%-20.3%) of deceased children who might have benefitted from specialized pediatric palliative care based on diagnosis received such care, with 110 (25.2%) receiving care for less than 8 days.
interpretationProgram growth and changes in patients' demographic and clinical characteristics indicate improved reach of programs. However, barriers remain that prevent most children with life-threatening conditions from receiving specialized pediatric palliative care services.
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