ArticlePloS one2016
Survivorship Care Plan Information Needs: Perspectives of Safety-Net Breast Cancer Patients.
Article in PloS one, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Pooled it
- Culturally Sensitive Approaches in Psychosocial Interventions to Enhance Well-Being of Immigrant Adults Diagnosed with Breast Cancer: A Systematic Review.International journal of environmental research and public health · 2025Pooled it
- Gender differences in the context of interventions for improving health literacy in migrants: a qualitative evidence synthesis.The Cochrane database of systematic reviews · 2024Pooled it
- The use of survivorship care plans by female racial and ethnic minority breast cancer survivors: a systematic review.Journal of cancer survivorship : research and practice · 2020Pooled it
- Patient Perspectives to Inform a Health Literacy Educational Program: A Systematic Review and Thematic Synthesis of Qualitative Studies.International journal of environmental research and public health · 2019Pooled it
- Catalyzing Navigation for Breast Cancer Survivorship (CaNBCS) in Safety-Net Settings: A Mixed Methods Study.Cancer control : journal of the Moffitt Cancer CenterTrial
- Evaluating the role of survivorship care plans in modifying disparities in health status among female cancer survivors in Maryland.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Enhancing Breast Cancer Survivorship Care: The Role of Nurses in Post-Treatment Follow-Up-A Scoping Review.Journal of advanced nursing · 2026Article
- Beyond breast cancer: mapping unmet needs and advancing an evidence-based framework of survivorship care.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Review
- Breast cancer survivors' perspectives on a clinical decision tool to support individualized exercise prescriptions and discussions.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- The Information Needs of Breast Cancer Patients at All Stages of Their Journey: A Scoping Review.Patient preference and adherence · 2026Review
- A scoping review of the evidence on survivorship care plans among minority, rural, and low-income populations.Journal of cancer survivorship : research and practice · 2025Article
- Are there opportunities to improve care as patients transition through the cancer care continuum? A scoping review.BMJ open · 2024Article
- The Role of Spirituality on Physical Activity and Sleep Among African American Long-Term Breast Cancer Survivors.Journal of racial and ethnic health disparities · 2024Article
- Acceptability and Feasibility of Survivorship Group Medical Visits for Breast Cancer Survivors in a Safety Net Hospital.Journal of cancer education : the official journal of the American Association for Cancer Education · 2024Article
- Experiences and meaningfulness of breast cancer survivorship care in improving the quality of life of immigrant women: A qualitative systematic review.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2024Article
- Differences in survivorship care experiences among older breast cancer survivors by clinical cancer characteristics, race/ethnicity, and socioeconomic factors: A SEER-CAHPS study.Breast cancer research and treatment · 2023Article
- Communicating Critical Information to Cancer Survivors: an Assessment of Survivorship Care Plans in Use in Diverse Healthcare Settings.Journal of cancer education : the official journal of the American Association for Cancer Education · 2021Article
- Survivorship Care Plan Preferences and Utilization Among Asian American Breast Cancer Survivors.Oncology nursing forum · 2021Review
- Challenges for Latina Breast Cancer Patient Survivorship Care in a Rural US-Mexico Border Region.International journal of environmental research and public health · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeDespite the Institute of Medicine's (IOM) 2005 recommendation, few care organizations have instituted standard survivorship care plans (SCPs). Low health literacy and low English proficiency are important factors to consider in SCP development. Our study aimed to identify information needs and survivorship care plan preferences of low literacy, multi-lingual patients to support the transition from oncology to primary care and ongoing learning in survivorship.
methodsWe conducted focus groups in five languages with African American, Latina, Russian, Filipina, White, and Chinese medically underserved breast cancer patients. Topics explored included the transition to primary care, access to information, knowledge of treatment history, and perspectives on SCPs.
resultsAnalysis of focus group data identified three themes: 1) the need for information and education on the transition between "active treatment" and "survivorship"; 2) information needed (and often not obtained) from providers; and 3) perspectives on SCP content and delivery.
conclusionsOur data point to the need to develop a process as well as written information for medically underserved breast cancer patients. An SCP document will not replace direct communication with providers about treatment, symptom management and transition, a communication that is missing in participating safety-net patients' experiences of cancer care. Women turned to peer support and community-based organizations in the absence of information from providers. IMPLICATIONS FOR CANCER SURVIVORS: "Clear and effective" communication of survivorship care for safety-net patients requires dedicated staff trained to address wide-ranging information needs and uncertainties.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.