ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2017
In support of an individualized approach to assessing quality of life: comparison between Patient Generated Index and standardized measures across four health conditions.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
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Who cites it
23 citing papers in PubMed.
- Comparative analysis of quality of life post coronary angioplasty and bypass surgery: A follow-up study on cardiac patients.Medicine · 2026Article
- Patient-reported Outcome Measures in Pediatric Orthopaedics.Journal of the Pediatric Orthopaedic Society of North America · 2025Review
- The relationship between social network size and brain structure in older adults living with HIV.Brain imaging and behavior · 2025Article
- A patient-centered view of symptoms, functional impact, and priorities in post-COVID-19 syndrome: cross-sectional results from the Québec Action Post-COVID cohort.BMC infectious diseases · 2025Article
- Time is now to consider how we evaluate person-centred care-the role of patient-reported outcomes.Frontiers in health services · 2025Article
- Commentary on Quigley et al.Physiotherapy Canada. Physiotherapie Canada · 2024Article
- Use of the Patient Generated Index to Identify Physical Health Challenges Among People Living with HIV: A Cross-Sectional Study.Physiotherapy Canada. Physiotherapie Canada · 2024Article
- Adaptation and content validation of measure yourself medical outcomes profile (MYMOP) for 7-11 year-old children.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Confirmatory analysis of the 13-MD and ranking of its meta-dimensions and items.Health care science · 2024Article
- The Patient Generated Index (PGI) as an early-warning system for predicting brain health challenges: a prospective cohort study for people living with Human Immunodeficiency Virus (HIV).Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Advances in the clinical application of orthotic devices for stroke and spinal cord injury since 2013.Frontiers in neurology · 2023Review
- Development of a Prototype for a Bilingual Patient-Reported Outcome Measure of the Important Health Aspects of Quality of Life in People Living with HIV: The Preference Based HIV Index (PB-HIV).Journal of personalized medicine · 2022Article
- The prototype of a preference-based index of weight-related quality of life: demonstrating the possibilities.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- A longitudinal view of successful aging with HIV: role of resilience and environmental factors.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Health related quality of life among pregnant women living with HIV in Kenya, results from comparing a patient generated index and the Euroqol 5 dimension 3 level.BMC women's health · 2022Article
- Action for better brain health among people living with HIV: protocol for a randomized controlled trial.BMC infectious diseases · 2021Article
- What is QOL in children and adolescents with physical disabilities? A thematic synthesis of pediatric QOL literature.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Review
- Content validity of preference-based measures for economic evaluation in chronic obstructive pulmonary disease.Health and quality of life outcomes · 2021Article
- Development and validation of a voice-of-the-patient measure of cognitive concerns experienced by people living with HIV.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Validation of an Individualized Measure of Quality of Life, Patient Generated Index, for Use with People with Parkinson's Disease.Neurology research international · 2020Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
backgroundIndividualized measures of health-related quality life (HRQL) have been used for decades and shown to provide unique information, but little work has been done to explain this uniqueness particularly across health conditions.
aimsTo estimate, across four health conditions, the magnitude of the association between scores derived from the Patient Generated Index (PGI) and those from fully standardized generic and disease-specific measures of the HRQL; to identify the extent to which the areas generated from the PGI are covered by the content of the fully standardized measures.
methodsThe PGI and other generic and disease-specific measures had been used in four different samples of people: stroke (n = 222), multiple sclerosis (MS; n = 185); advanced cancer (n = 173), and HIV+ (n = 690). Areas nominated on the PGI were harmonized to a standard nomenclature. Pearson correlations were estimated between PGI and other measures.
resultsData from 1263 people indicated that PGI provided the lowest rating for HRQL across all health conditions. The areas nominated differed across conditions with walking/mobility: the most common for stroke (42%), work/school for MS (62%), health for HIV+ (97%), and fatigue for cancer (39%). Many of the aspects of health included in generic measures were not nominated using the PGI and vice versa. The highest correlations between the PGI and other measures were observed for people with MS, with correlations between 0.53 and 0.59; lowest correlations were observed for people with HIV and cancer, ≤0.33. DISCUSSION: The PGI scores reflect those aspects of quality of life that are important to patients in which they would most value an improvement. Heterogeneity in HRQL across health conditions is poorly discriminated using standardized measures. A "one-size-fits-all" approach to HRQL assessment may not provide the most useful representation of this important construct.
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