Evidence map›Paper›PMID 27988907›Full record

ReviewQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2017

Appraisal assessment in patient-reported outcome research: methods for uncovering the personal context and meaning of quality of life.

Carolyn E Schwartz, Joel A Finkelstein, Bruce D Rapkin

Abstract readReview
PubMed Publisher
In one paragraph

Review in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.

0numbers the graph read from it
0cells of the map it votes in
22citing papers in PubMed
12.5field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

22 citing papers in PubMed, 42 citations in OpenAlex.

  1. Response shift in oncology: fact or myth.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Review
  2. Article
  3. Toward characterizing brain fog in long COVID: correlates and impact on measurement metrics.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
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  5. Observational
  6. Article
  7. The mediating role of appraisal on health-related quality of life in adolescent and young adult cancer survivors.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023
    Article
  8. Article
  9. Article
  10. Evaluation of the link between the Guttman errors and response shift at the individual level.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022
    Article
  11. Article
  12. Article
  13. Response-shift effects in neuromyelitis optica spectrum disorder: a secondary analysis of clinical trial data.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021
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  14. Article
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  16. Article
  17. Leveraging Latent Dirichlet Allocation in processing free-text personal goals among patients undergoing bladder cancer surgery.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019
    Article
  18. Article
  19. Development of a practical outcome measure to account for individual differences in quality-of-life appraisal: the Brief Appraisal Inventory.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2018
    Article
  20. Distinguishing appraisal and personality influences on quality of life in chronic illness: introducing the quality-of-life Appraisal Profile version 2.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 3 institutions in 2 countries.

Carolyn E SchwartzDeltaQuest Foundation, Inc., 31 Mitchell Road, Concord, MA, 01742, USA. carolyn.schwartz@deltaquest.org.
Joel A FinkelsteinDivision of Orthopaedics, Sunnybrook Health Sciences Center and the University of Toronto, 2075 Bayview Avenue, Room MG361, Toronto, ON, Canada.
Bruce D RapkinDepartment of Epidemiology and Population Health, Division of Community Collaboration and Implementation Science, Albert Einstein College of Medicine, Bronx, NY, USA.
Albert Einstein College of Medicine · USDeltaQuest Foundation (United States) · USSunnybrook Health Science Centre · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundRecent work on patient-reported outcomes (PROs) focuses on precise, brief measures, which generally convey little about what an individual's rating actually means. Individual differences in appraisal are important and relevant to PRO research. This paper highlights the advantages of integrating appraisal assessment into clinical research.

methodsThe most comprehensive method for assessing appraisal, the quality of life (QOL) Appraisal Profile, includes open-ended and multiple choice questions to assess four appraisal parameters: frame of reference, sampling of experience, standards of comparison, and combinatory algorithm. We illustrate with empirical findings four classes of investigation that would benefit from appraisal assessment: methodological, interpretation of change, the backstory of resilience, and clinical applications.

resultsA methodological investigation of HIV/AIDS patients revealed a range of cognitive schemas induced by the then-test response shift detection method, only 15% of which reflected the presumed process invoked. In this same study and in a study of people with multiple sclerosis (MS), interpretation of change in positive versus negative mental-health response shifts was characterized by different appraisal processes. In studying resilience in MS patients, patients with more reserve-building activities were more likely to use appraisals that emphasized the positive and more controllable aspects of their illness experience, as compared to lower-reserve patients. In underserved cancer patients, the QOL Appraisal Profile was used as a clinical interview to articulate current concerns and for personalized treatment decision-making to reduce burden and promote adherence.

conclusionsIntegrating appraisal assessment can provide a more textured, person-centered understanding of person-factors not captured by standard PROs.

Indexed as

Patient Reported Outcome MeasuresDecision MakingHumansQuality of LifeAppraisalPatient-reported outcomesResponse shift

Identifiers

PMID27988907
OpenAlexW2565119423

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.