ArticleHealth expectations : an international journal of public participation in health care and health policy2017
Using a co-production prioritization exercise involving South Asian children, young people and their families to identify health priorities requiring further research and public awareness.
Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
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Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it, 41 citations in OpenAlex.
- A systematic review to identify research priority setting in Black and minority ethnic health and evaluate their processes.PloS one · 2021Pooled it
- Global Insights on the Involvement of Ethnic Minority Populations in Health and Social Care Research Priority Setting: A Systematic Scoping Review.Journal of racial and ethnic health disparities · 2026Article
- The Codesign, Development and Implementation of an Indian Poststroke Swallow and Hydration Care Bundle: A Feasibility Study.Stroke research and treatment · 2026Article
- The academic impact of paediatric research agendas: a descriptive analysis.Research involvement and engagement · 2024Article
- PPIE in a technical research study: Using public involvement to refine the concept and understanding and move towards a multidimensional concept of disability.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Identifying the Health Concerns of Pregnant British Pakistani Women Living in Deprived Areas: A Qualitative Study.Maternal and child health journal · 2024Article
- The role of knowledge, primary care and community engagement to improve breast-screening access for Pakistani women in the United Kingdom: A secondary analysis of a qualitative study.Journal of health services research & policy · 2023Article
- What interventions should we implement in England's mental health services? The mental health implementation network (MHIN) mixed-methods approach to rapid prioritisation.Frontiers in health services · 2023Article
- Co-Design as Enabling Factor for Patient-Centred Healthcare: A Bibliometric Literature Review.ClinicoEconomics and outcomes research : CEOR · 2023Review
- Impact of the COVID-19 pandemic on family carers of those with profound and multiple intellectual disabilities: perspectives from UK and Irish Non-Governmental Organisations.BMC public health · 2022Article
- Involving children and young people in paediatric research priority setting: a narrative review.BMJ paediatrics open · 2022Review
- Exploring the obesity concerns of British Pakistani women living in deprived inner-city areas: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Developing an obesity research agenda with British Pakistani women living in deprived areas with involvement from multisectoral stakeholders: Research priority setting with a seldom heard group.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Research priority setting in obesity: a systematic review.Zeitschrift fur Gesundheitswissenschaften = Journal of public health · 2021Review
- Research as usual in humanitarian settings? Equalising power in academic-NGO research partnerships through co-production.Conflict and health · 2021Article
- Patient and public priorities for breast cancer research: a qualitative study in the UK.BMJ open · 2021Article
- European Forum for Primary Care: Position Paper for Primary Care Mental Health.Primary health care research & development · 2020Article
- A structured collaborative approach to intervention design using a modified intervention mapping approach: a case study using the Management and Interventions for Asthma (MIA) project for South Asian children.BMC medical research methodology · 2020Article
- Do social accountability approaches work? A review of the literature from selected low- and middle-income countries in the WHO South-East Asia region.Health policy and planning · 2020Review
- Article
Corrections and comments
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Authors and funding
5 authors at 4 institutions in 2 countries.
Funding
Abstract
objectivesTo facilitate South Asian (SA) families and health-care professionals (HCPs) participation in a prioritization exercise to co-produce child health research and public awareness agendas.
designA three-stage process was adopted involving the following: (i) systematic literature review, (ii) HCP scoping survey and (iii) focus groups of SA adolescents and families. A Punjabi- and Urdu-speaking community facilitator moderated focus groups. A British Sign Language interpreter assisted in the hard of hearing group. Concordant and discordant themes between HCPs and SAs were identified.
settingNational survey of HCPs. Leicestershire for SA families.
participantsA total of 27 HCPs and 35 SAs. SAs varied by descent, age (16-74), UK stay length (3-57 years) religion and disability.
resultsRanked by submission frequency in the survey, HCPs prioritized (i) public awareness on obesity, mental health, health-care access, vitamin D and routine health checks and (ii) research on nutrition, diabetes, health education and parenting methods. DISCUSSION: South Asians prioritized research into the effectiveness of alternative medicines, a theme not identified by HCPs. Both HCPs and SAs prioritized increased research or public awareness on mental health illness, blood and organ donation, obesity and diet. Whilst HCPs identified diabetes, vitamin D and rickets together with parenting methods were important priorities requiring increased public awareness, and these views were not shared by SAs.
conclusionsMinority groups are not always included in priority setting exercises due to concerns about language and perceived difficulty with accessing communities. Through this co-production exercise, we showed that it is possible and essential.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.