Evidence map›Paper›PMID 27932629›Full record

ArticlePalliative medicine2017

Breathlessness during daily activity: The psychometric properties of the London Chest Activity of Daily Living Scale in patients with advanced disease and refractory breathlessness.

Charles C Reilly, Claudia Bausewein, Rachel Garrod, Caroline J Jolley, John Moxham, Irene J Higginson

3 registry-linked trialsOpen access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Palliative medicine, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 3 registered trials, which are not on this map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.3field-weighted citation impact, top 17% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT01165034 phase3unknown statusnot on this map

Development,Effectiveness and Cost-effectiveness of a New Respiratory and Palliative Care Out-patient Breathlessness Support Service

TypeinterventionalSponsorKing's College LondonRan2010 to 2013Enrolled110ConditionsBreathless Patients With Any Established Underlying Medical DiagnosisArmsBreathlessness Support Service
NCT04224233 nacompletednot on this mapstarted 2020, after this paper: background citation

iLiFE: a Home-based Physical Activity Programme for Patients With Advanced Interstitial Lung Diseases

TypeinterventionalSponsorAveiro UniversityRan2020 to 2024Enrolled48ConditionsInterstitial Lung Diseases (ILD)ArmsHome-based physical activity programme, Usual care
NCT06317831 recruitingnot on this mapstarted 2024, after this paper: background citation

LetS Get fUnctional! FuNctional Status in pEople With intersTitial Lung Disease - the SUNSET Study

Typeobservational_patient_registrySponsorAveiro UniversityRan2024 to 2028Enrolled150ConditionsInterstitial Lung Diseases
3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 14 citations in OpenAlex.

  1. Article
  2. A scoping review of palliative care outcome measures in interstitial lung disease.European respiratory review : an official journal of the European Respiratory Society · 2021
    Article
  3. Article
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 2 countries.

Charles C Reilly1 Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King's College London, London, UK.
Claudia Bausewein1 Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King's College London, London, UK.
Rachel Garrod4 Department of Respiratory Medicine, King's College London, London, UK.
Caroline J Jolley5 Department of Asthma, Allergy and Respiratory Science, King's College London, London, UK.
John Moxham5 Department of Asthma, Allergy and Respiratory Science, King's College London, London, UK.
Irene J Higginson1 Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, King's College London, London, UK.
King's College London · GBCicely Saunders International · GBLMU Klinikum · DE

Funding

Department of Health PB-PG-0808-17311Marie Curie MCCC-RP-15-A18859
6 · The paper itself

Abstract

backgroundThe London Chest Activities of Daily Living Scale measures the impact of breathlessness on both activity and social functioning. However, the London Chest Activities of Daily Living Scale is not routinely used in patients with advanced disease.

aimTo assess the psychometric properties of the London Chest Activities of Daily Living Scale in patients with refractory breathlessness due to advanced disease.

designA cross-sectional secondary analysis of data from a randomised controlled parallel-group, pragmatic, single-blind fast-track trial (randomised controlled trial) investigating the effectiveness of an integrated palliative and respiratory care service for patients with advanced disease and refractory breathlessness, known as the Breathlessness Support Service (NCT01165034). All patients completed the following questionnaires: the London Chest Activities of Daily Living Scale, Chronic Respiratory Questionnaire, the Palliative care Outcome Scale, Palliative care Outcome Scale-symptoms, the Hospital Anxiety and Depression Scale and breathlessness measured on a numerical rating scale. Data quality, scaling assumptions, acceptability, internal consistency and construct validity of the London Chest Activities of Daily Living Scale were determined using standard psychometric approaches. SETTING/

participantsBreathless patients with advanced malignant and non-malignant disease.

resultsA total of 88 patients were studied, primary diagnosis included; chronic obstructive pulmonary disease = 53, interstitial lung disease = 17, cancer = 18. Median (range) London Chest Activities of Daily Living Scale total score was 46.5 (14-67). No floor or ceiling effect was observed for the London Chest Activities of Daily Living Scale total score. Internal consistency was good, and Cronbach's alpha for the London Chest Activities of Daily Living Scale total score was 0.90. Construct validity was good with 13 out of 15 a priori hypotheses met.

conclusionPsychometric analyses suggest that the London Chest Activities of Daily Living Scale is acceptable, reliable and valid in patients with advanced disease and refractory breathlessness.

Indexed as

Activities of Daily LivingQuality of LifeAdultAgedAged, 80 and overCross-Sectional StudiesDyspneaFemaleHumansLondonLung Diseases, InterstitialMaleMiddle AgedNeoplasmsPsychometricsPulmonary Disease, Chronic Obstructiveactivities of daily livingBreathlessnessbreathlessness support servicecancerchronic obstructive pulmonary diseasedyspnoeapalliative carerefractory breathlessnesstherapies

Identifiers

PMID27932629
PMCPMC5613804
OpenAlexW2560778324

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.