Evidence map›Paper›PMID 27927667›Full record

ArticleBMJ open2016

Life after prostate cancer diagnosis: protocol for a UK-wide patient-reported outcomes study.

Amy Downing, Penny Wright, Richard Wagland, Eila Watson, Therese Kearney, Rebecca Mottram, Majorie Allen, Victoria Cairnduff, Oonagh McSorley, Hugh Butcher and 17 more

Abstract read
In one paragraph

Article in BMJ open, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed.

  1. A nationwide, longitudinal collection of patient-reported outcomes from prostate cancer patients and controls.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
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  7. Strategies for living well with hormone-responsive advanced prostate cancer-a qualitative exploration.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
    Article
  8. Article
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  10. Cancer-related symptoms, mental well-being, and psychological distress in men diagnosed with prostate cancer treated with androgen deprivation therapy.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

27 authors.

Amy DowningLeeds Institute of Cancer and Pathology, St James's University Hospital, Leeds, UK.
Penny WrightLeeds Institute of Cancer and Pathology, St James's University Hospital, Leeds, UK.
Richard WaglandFaculty of Health Sciences, University of Southampton, Southampton, UK.
Eila WatsonFaculty of Health and Life Sciences, Department of Applied Health and Professional Development, Oxford Brookes University, Oxford, UK.
Therese KearneyNorthern Ireland Cancer Registry, Queens University Belfast, Royal Victoria Hospital, Belfast, UK.
Rebecca MottramLeeds Institute of Cancer and Pathology, St James's University Hospital, Leeds, UK.
Majorie AllenLeeds Institute of Cancer and Pathology, St James's University Hospital, Leeds, UK.
Victoria CairnduffNorthern Ireland Cancer Registry, Queens University Belfast, Royal Victoria Hospital, Belfast, UK.
Oonagh McSorleyNorthern Ireland Cancer Registry, Queens University Belfast, Royal Victoria Hospital, Belfast, UK.
Hugh ButcherLeeds Institute of Cancer and Pathology, St James's University Hospital, Leeds, UK.
Luke HounsomeNational Cancer Registration and Analysis Service, Public Health England, Bristol, UK.
Conan DonnellyNorthern Ireland Cancer Registry, Queens University Belfast, Royal Victoria Hospital, Belfast, UK.
Peter SelbyLeeds Institute of Cancer and Pathology, St James's University Hospital, Leeds, UK.
Paul KindAcademic Unit of Health Economics, Institute of Health Sciences, University of Leeds, Leeds, UK.
William CrossLeeds Teaching Hospitals NHS Trust, St James's University Hospital, Leeds, UK.
James W H CattoAcademic Urology Unit, University of Sheffield, Medical School, Sheffield, UK.
Dyfed HuwsWelsh Cancer Intelligence and Surveillance Unit, Cardiff, UK.
David H BrewsterPublic Health and Intelligence (NHS National Services Scotland), Edinburgh, UK.
Emma McNairPublic Health and Intelligence (NHS National Services Scotland), Edinburgh, UK.
Lauren MathesonFaculty of Health and Life Sciences, Department of Applied Health and Professional Development, Oxford Brookes University, Oxford, UK.
Carol RivasFaculty of Health Sciences, University of Southampton, Southampton, UK.
Johana NayoanFaculty of Health Sciences, University of Southampton, Southampton, UK.
Mike HortonLeeds Institute of Cancer and Pathology, St James's University Hospital, Leeds, UK.
Jessica CornerFaculty of Health Sciences, University of Southampton, Southampton, UK.
Julia VerneKnowledge and Intelligence Directorate, Public Health England, Bristol, UK.
Anna GavinNorthern Ireland Cancer Registry, Queens University Belfast, Royal Victoria Hospital, Belfast, UK.
Adam W GlaserLeeds Institute of Cancer and Pathology, St James's University Hospital, Leeds, UK.

Funding

Department of Health HS&DR/14/156/15Department of Health RP-PG-0707-10101
6 · The paper itself

Abstract

backgroundProstate cancer and its treatment may impact physically, psychologically and socially; affecting the health-related quality of life of men and their partners/spouses. The Life After Prostate Cancer Diagnosis (LAPCD) study is a UK-wide patient-reported outcomes study which will generate information to improve the health and well-being of men with prostate cancer. METHODS AND ANALYSIS: Postal surveys will be sent to prostate cancer survivors (18-42 months postdiagnosis) in all 4 UK countries (n=∼70 000). Eligible men will be identified and/or verified through cancer registration systems. Men will be surveyed twice, 12 months apart, to explore changes in outcomes over time. Second, separate cohorts will be surveyed once and the design will include evaluation of the acceptability of online survey tools. A comprehensive patient-reported outcome measure has been developed using generic and specific instruments with proven psychometric properties and relevance in national and international studies. The outcome data will be linked with administrative health data (eg, treatment information from hospital data). To ensure detailed understanding of issues of importance, qualitative interviews will be undertaken with a sample of men who complete the survey across the UK (n=∼150) along with a small number of partners/spouses (n=∼30). ETHICS AND DISSEMINATION: The study has received the following approvals: Newcastle and North Tyneside 1 Research Ethics Committee (15/NE/0036), Health Research Authority Confidentiality Advisory Group (15/CAG/0110), NHS Scotland Public Benefit and Privacy Panel (0516-0364), Office of Research Ethics Northern Ireland (16/NI/0073) and NHS R&D approval from Wales, Scotland and Northern Ireland. Using traditional and innovative methods, the results will be made available to men and their partners/spouses, the funders, the NHS, social care, voluntary sector organisations and other researchers.

Indexed as

Adaptation, PsychologicalClinical ProtocolsHumansLife Change EventsMalePatient Reported Outcome MeasuresPolicy MakingProstatic NeoplasmsPsychometricsQuality of LifeSpousesState MedicineSurvivorsUnited KingdomQUALITATIVE RESEARCH

Identifiers

PMID27927667
PMCPMC5168696

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.