ArticleBMJ open2016
Development of a model of dementia support and pathway for culturally and linguistically diverse communities using co-creation and participatory action research.
Article in BMJ open, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 40 citations in OpenAlex.
- Co-Designing Technology for Aging in Place: A Systematic Review.The Gerontologist · 2021Pooled it
- Trial
- Assessing Culturally Tailored Dementia Interventions to Support Informal Caregivers of People Living with Dementia (PLWD): A Scoping Review.Journal of racial and ethnic health disparities · 2025Article
- Validation of a dementia diagnosis attitude scale in simplified Chinese with Mandarin-speaking adults in Australia.Australasian journal on ageing · 2025Article
- Mapping the evidence on dementia care pathways - A scoping review.BMC geriatrics · 2024Article
- Assessing the impact of an online dementia awareness initiative co-created with and for English, Arabic and Vietnamese speaking communities: A case study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Patient navigation programs for people with dementia, their caregivers, and members of the care team: a scoping review.JBI evidence synthesis · 2023Article
- Participatory Research Approaches in Alzheimer's Disease and Related Dementias Literature: A Scoping Review.Innovation in aging · 2023Article
- Breaking the barriers: overcoming dementia-related stigma in minority communities.Frontiers in psychiatry · 2023Article
- The experience of structural burden for culturally and linguistically diverse family carers of people living with dementia in Australia.Health & social care in the community · 2022Article
- A co-design of clinical virtual care pathways to engage and support families requiring neonatal intensive care in response to the COVID-19 pandemic (COVES study).Journal of neonatal nursing : JNN · 2021Article
- Article
- Use of participatory action research approach to develop a self-management resource for persons living with dementia.Dementia (London, England) · 2021Article
- Persons With a Migration Background Caring for a Family Member With Dementia: Challenges to Shared Care.The Gerontologist · 2020Article
- Developing evidence-based guidance for assessment of suspected infections in care home residents.BMC geriatrics · 2020Review
- Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo develop an inclusive model of culturally sensitive support, using a specialist dementia nurse (SDN), to assist people with dementia from culturally and linguistically diverse (CALD) communities and their carers to overcome barriers to accessing health and social care services.
designCo-creation and participatory action research, based on reflection, data collection, interaction and feedback from participants and stakeholders.
settingAn SDN support model embedded within a home nursing service in Melbourne, Australia was implemented between October 2013 and October 2015.
participantsPeople experiencing memory loss or with a diagnosis of dementia from CALD backgrounds and their carers and family living in the community setting and expert stakeholders. DATA COLLECTION AND ANALYSIS: Reflections from the SDN on interactions with participants and expert stakeholder opinion informed the CALD dementia support model and pathway.
resultsInteraction with 62 people living with memory loss or dementia from CALD backgrounds, carers or family members receiving support from the SDN and feedback from 13 expert stakeholders from community aged-care services, consumer advocacy organisations and ethnic community group representatives informed the development and refinement of the CALD dementia model of care and pathway. We delineate the three components of the 'SDN' model: the organisational support; a description of the role; and the competencies needed. Additionally, we provide an accompanying pathway for use by health professionals delivering care to consumers with dementia from CALD backgrounds.
conclusionsOur culturally sensitive model of dementia care and accompanying pathway allows for the tailoring of health and social support to assist people from CALD backgrounds, their carers and families to adjust to living with memory loss and remain living in the community as long as possible. The model and accompanying pathway also have the potential to be rolled out nationally for use by health professionals across a variety of health services.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.