ArticleBMC pediatrics2016
How do parents experience support after the death of their child?
Article in BMC pediatrics, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
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Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories.BMC palliative care · 2020Pooled it
- Article
- Capital of Life in Death: How Bereaved Individuals Mobilise Cultural and Social Capital in UK Death Administration.The British journal of sociology · 2025Article
- Needs and experiences of families after a sudden unexplained death in childhood: a qualitative study.BMJ paediatrics open · 2025Article
- Trajectory patterns and influencing factors of depression due to child bereavement among older adults in China: a 5-year longitudinal study.Frontiers in public health · 2025Article
- A model for older adults' coping with the death of their child: a grounded theory study.BMC psychiatry · 2024Article
- Asynchronous online focus groups for research with people living with amyotrophic lateral sclerosis and family caregivers: usefulness, acceptability and lessons learned.BMC medical research methodology · 2023Article
- Identification of Factors Affecting Self-Efficacy in Women with Spontaneous Pregnancy Loss.Healthcare (Basel, Switzerland) · 2023Article
- Factors influencing illness uncertainty in parents of children with congenital adrenal hyperplasia in a developing country: A cross-sectional study.Belitung nursing journal · 2023Article
- The meaning of losing a child in older adults: a qualitative study.BMC geriatrics · 2021Article
- What is good grief support? Exploring the actors and actions in social support after traumatic grief.PloS one · 2021Article
- Pregnancy and infant loss: a survey of families' experiences in Ontario Canada.BMC pregnancy and childbirth · 2019Article
- Support Received and Provided by Older Adults who Lost a Child: A Qualitative Content Analysis.Iranian journal of nursing and midwifery researchArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundA child's death is an enormous tragedy for both the parents and other family members. Support for the parents can be important in helping them to cope with the loss of their child. In the Netherlands little is known about parents' experiences of the support they receive after the death of their child. The purpose of this study is to determine what support parents in the Netherlands receive after the death of their child and whether the type of care they receive meets their needs.
methodParents who lost a child during pregnancy, labour or after birth (up to the age of two) were eligible for participation. They were recruited from three parents' associations. Sixty-four parents participated in four online focus group discussions. Data on background characteristics were gathered through an online questionnaire. SPSS was used to analyse the questionnaires and Atlas ti. was used for the focus group discussions.
resultsOf the 64 participating parents, 97% mentioned the emotional support they received after the death of their child. This kind of support was generally provided by family, primary care professionals and their social network. Instrumental and informational support, which respectively 80% and 61% of the parents reported receiving, was mainly provided by secondary care professionals. Fifty-two per cent of the parents in this study reported having received insufficient emotional support. Shortcomings in instrumental and informational support were experienced by 25% and 19% of the parents respectively. Parental recommendations were directed at ongoing support and the provision of more information.
conclusionTo optimise the way Dutch professionals respond to a child's death, support initiated by the professional should be provided repeatedly after the death of a child. Parents appreciated follow-up contacts with professionals at key moments in which they were asked whether they needed support and what kind of support they would like to receive.
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