Evidence map›Paper›PMID 27926908›Full record

ArticlePublic health genomics2017

Community Perceptions of Biobanking Participation: A Qualitative Study among Mexican-Americans in Three Texas Cities.

Natalia I Heredia, Sarah Krasny, Larkin L Strong, Laura Von Hatten, Lynne Nguyen, Belinda M Reininger, Lorna H McNeill, María E Fernández

Open access · bronzeAbstract readMulticenter Study
In one paragraph

Article in Public health genomics, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers.

0numbers the graph read from it
0cells of the map it votes in
39citing papers in PubMed
2.1field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

39 citing papers in PubMed, 51 citations in OpenAlex.

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  7. Trust and Support for Cancer Research Biobanks: Insights from Cancer Patients in Poland.Medical science monitor : international medical journal of experimental and clinical research · 2024
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  19. Associations between the Willingness to Donate Samples to Biobanks and Selected Psychological Variables.International journal of environmental research and public health · 2022
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 4 institutions in 1 country.

Natalia I HerediaSchool of Public Health, The University of Texas Health Science Center at Houston, Houston, TX, USA.
Sarah Krasny
Larkin L Strong
Laura Von Hatten
Lynne Nguyen
Belinda M Reininger
Lorna H McNeill
María E Fernández
The University of Texas Health Science Center at Houston · USThe University of Texas MD Anderson Cancer Center · USBaylor College of Medicine · USThe University of Texas at Dallas · US

Funding

Tumor Evolution and Metastasis ProgramP30CA016672 · NCI · UNIVERSITY OF TX MD ANDERSON CAN CTR · PI Fabien Delerue · 1985 to 2026
$290.8M
Center for Clinical and Translational Sciences (CCTS)UL1TR000371 · NCATS · UNIVERSITY OF TEXAS HLTH SCI CTR HOUSTON · PI MCPHERSON, DAVID D · 2012 to 2016
$13.4M
BEHAVIORAL SCIENCE EDUCATION--CANCER PREVENTION/CONTROLR25CA057712 · NCI · UNIVERSITY OF TEXAS HLTH SCI CTR HOUSTON · PI MULLEN, PATRICIA DOLAN · 1992 to 2017
$8.6M
Training ProgramU54CA153505 · NCI · UNIVERSITY OF TX MD ANDERSON CAN CTR · PI BASEN-ENGQUIST, KAREN M, FERNANDEZ, MARIA EULALIA · 2010 to 2015
$4.7M
NCATS NIH HHS UL1 TR000371NCI NIH HHS P30 CA016672NCI NIH HHS R25 CA057712NCI NIH HHS U54 CA153505
6 · The paper itself

Abstract

backgroundMost biospecimens in the US are collected from non-Hispanic Whites, limiting the generalizability of findings. There is a need to increase participation in biobanking among ethnic and racial minorities. The purpose of this study was to use qualitative methods to identify factors that may influence Mexican-American individuals' willingness to participate in biobanking.

methodsWe conducted 15 focus groups in three Texas cities with Mexican-American individuals, in both Spanish and English.

resultsLack of knowledge about medical research and biobanks, lack of information about the specifics of biobanking participation, lack of communication of the results, fear of pain or harm, and distrust of the healthcare system or health research were identified as barriers to biobanking participation. Facilitators to participation were altruism, safety, understanding biobanking procedures and purposes, perceived benefits to participation, and culturally appropriate recruitment strategies. Although Mexican-Americans living in Texas are willing to donate biospecimens for altruistic reasons, such as helping society or advancing science, they want more information about what biobanking entails. They want to be assured that participation will not cause them harm and that the research is conducted with good intentions.

conclusionResults from this study can inform educational materials or interventions to increase Hispanic participation in biobanking.

Indexed as

Biological Specimen BanksPublic OpinionAdolescentAdultAgedAltruismBiomedical ResearchCitiesComprehensionFearFemaleFocus GroupsHealth Knowledge, Attitudes, PracticeHumansMaleMexican AmericansBiobankingBiorepositoryBiospecimensFocus groupsHispanicsMexican-AmericansQualitative research

Identifiers

PMID27926908
PMCPMC5453816
OpenAlexW2560091456

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.