ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2017
Caring at home until death: enabled determination.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 52 citations in OpenAlex.
- Comparison of the experience of caregiving at end of life or in hastened death: a narrative synthesis review.BMC palliative care · 2020Pooled it
- Caregiver burden in advanced cancer in tertiary care palliative medicine.BMJ supportive & palliative care · 2025Article
- Preparing for home death in rural areas - the experience of family caregivers providing palliative cancer care.International journal of circumpolar health · 2025Article
- Article
- Informal Palliative Care at Home: A Focus Group Study Among Professionals Working in Palliative Care in Portugal.Healthcare (Basel, Switzerland) · 2025Article
- Ambivalent and heavy burdened wanderers on a road less travelled: a meta-ethnography on end-of-life care experiences among family caregivers in rural areas.BMC health services research · 2024Article
- Family caregivers' preferences for support when caring for a family member with cancer in late palliative phase who wish to die at home - a grounded theory study.BMC palliative care · 2024Article
- Information and Communication Technologies to Support the Provision of Respite Care Services: Scoping Review.JMIR nursing · 2023Article
- Factors Related to Family Caregivers' Readiness for the Hospital Discharge of Advanced Cancer Patients.International journal of environmental research and public health · 2022Article
- Facilitators and barriers in using comics to support family caregivers of patients receiving palliative care at home: A qualitative study.Palliative medicine · 2022Article
- Developing an mHealth Application to Coordinate Nurse-Provided Respite Care Services for Families Coping With Palliative-Stage Cancer: Protocol for a User-Centered Design Study.JMIR research protocols · 2021Article
- The 'work' of managing medications when someone is seriously ill and dying at home: A longitudinal qualitative case study of patient and family perspectives'.Palliative medicine · 2021Article
- Feeling called to care: a qualitative interview study on normativity in family caregivers' experiences in Dutch home settings in a palliative care context.BMC palliative care · 2021Article
- Putting the Patient First: A Scoping Review of Patient Desires in Canada.Healthcare policy = Politiques de sante · 2021Article
- The Concept of Respite in Palliative Care: Definitions and Discussions.Current oncology reports · 2021Review
- Constructing stability - a classic grounded theory of next-of-kin in palliative cancer care.BMC palliative care · 2020Article
- Needs of caregivers of patients receiving in-home palliative and end-of-life care.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2020Article
- Besoins des proches aidants qui accompagnent une personne en soins palliatifs et de fin de vie à domicile.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2020Article
- "Non-palliative care" - a qualitative study of older cancer patients' and their family members' experiences with the health care system.BMC health services research · 2018Article
- Impact of the Macmillan specialist Care at Home service: a mixed methods evaluation across six sites.BMC palliative care · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe importance of family caregivers in providing palliative care at home and in supporting a home death is well supported. Gaining a better understanding of what enables palliative family caregivers to continue caring at home for their family members until death is critical to providing direction for more effective support. The purpose of the study was to describe the experiences of bereaved family caregivers whose terminally ill family members with advanced cancer were successful in achieving a desired home death.
methodA qualitative interpretive descriptive approach was used. Data were collected using semi-structured, audio-recorded interviews conducted in-person or via telephone in addition to field notes and reflective journaling. The study took place in British Columbia, Canada, and included 29 bereaved adult family caregivers who had provided care for a family member with advanced cancer and experienced a home death.
resultsFour themes captured the experience of caring at home until death: context of providing care, supportive antecedents to providing care, determination to provide care at home, and enabled determination. Factors that enabled determination to achieve a home death included initiation of formal palliative care, asking for and receiving help, augmented care, relief or respite, and making the healthcare system work for the ill person.
conclusionsClarifying caregiving goals and supporting the factors that enable caregiver determination appear to be critical in enhancing the likelihood of a desired home death.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.